I don’t think healthy people every really get chronic illness.
I have a friend I know from when we were both 6. She is the only person living nearby and so she saw me go from walking through limping to wheelchair on a daily basis. I keep her updated on my health even tho we rarely hang out anymore. She was gonna come over yesterday and I had to cancel. She asked if I can’t hang out later that day. When I said i won’t feel better later, that if I feel that bad in the morning later will only get worse she got annoyed and “joked” that I’m just finding excuses. And I was surprised, she knows all about me being disabled after all? So, a bit taken aback, I told her it’s a normal thing for me.
“But you got the diagnosis now, aren’t you better?? I thought you’ll get better now”
She was honestly surprised and it made me realize a thing. They don’t get it. They don’t get that getting diagnosed only equals benefits like welfare or parking spot for us, and sometimes better pain meds but that is just like pushing luck. That it’s a forever thing. That that one day we felt good a week ago was just a bright spot and doesn’t mean we won’t need our aids anymore, cause chronic illness is not linear and will make a great comeback in next four hours, and the next good day is planned on when we’re 70. Cause when abled people are sick, they get better. And our illness is just an excuse for them. And when we say we will never get better they think we’re being dramatic and pessimistic. And I don’t think they’ll ever get it, cause to get it you need to live it. And I want my friends to stay healthy and not go through hell.
This is definitely okay to reblog and abled people are encouraged to reblog cause maybe it’ll help others understand
Hello it’s me Lexa and this post is relevant again as I just had the Legit Same Talk with someone and I exhausted my number of fucks to give
Reminded of when I had a boss who repeatedly brought up the number of vacation days I used “without advance notice.”
Important detail: this is the kind of desk job where there’s no particular need to have a certain amount of people in the office at any given time. She just didn’t like me taking vacation days without advance notice because she thinks the basic principle of vacations is that you should give notice weeks in advance for that.
I told her that my chronic pain strikes without warning, and the number of sick days the company offers isn’t enough, so I have to spend my vacation days as extra sick days, and I don’t like that either.
So, naturally, every meeting she began pressuring me to see a doctor to get cured. I was pressured into disclosing to her a number of details about how I have tried a great many treatments, and that this is likely to be a lifelong problem for me. And anyway, if I’m still getting my work done, and she can’t name any specific problems caused by me using my vacation days like this, what’s the problem?
No, I couldn’t go to HR about this. I was already on thin ice with them after HR gave me some stern warnings not to be so “confrontational” about the CTO’s racism. I eventually had to find a new job.
Anyway the new job fired me after a year for excessive use of sick days.














