WaitFiveMinutes

Right now I'm just really proud of myself for taking my medication on time, or at all.

there's few things worse than opening up to someone you thought was a friend about the crippling fear epilepsy gives you only to have them never speak to you again

It's nice to see mutuals posting the epilepsy warning for the new star wars movie but I'd like to see just one person who isn't affected say "do we really need these effects? Do they make the movie better? What if they made the movie without them so everyone could enjoy the movie?"

I guess we're crying about Juice Wrld today

im just mad as hell at my epilepsy lately. mostly mad that i can't control it, and mad that i can't control how others perceive it and can't comprehend what it's like to live everyday with the knowledge that a breakthrough seizure is a heartbeat away, and mad that it is never, ever going away

I'm seriously considering moving to Europe. I can't take knowing I'm going to spend my life paying all this money for the crime of having epilepsy.

People with epilepsy be like: "is this just a headache or a precursor to a horrible seizure?"

I left a job because 12 hour days led to my first seizure in four years and now they want the money they paid me during training back. Almost 2k on top of all the medical bills I've incurred since then, I just feel.... bad.

not to be poor on main but i haven't eaten since yesterday and I'm terrified low blood sugar is gonna give me a seizure

I'm coming up on three months without a seizure and I'm pleased for the most part, but I just keep sliding into that negative mindset of "this is forever. no escape." when I take my medication. I just feel trapped, emotionally, physically, and financially. But! We endure, and continue, regardless of what form this takes.