I donât think healthy people every really get chronic illness.
I have a friend I know from when we were both 6. She is the only person living nearby and so she saw me go from walking through limping to wheelchair on a daily basis. I keep her updated on my health even tho we rarely hang out anymore. She was gonna come over yesterday and I had to cancel. She asked if I canât hang out later that day. When I said i wonât feel better later, that if I feel that bad in the morning later will only get worse she got annoyed and âjokedâ that Iâm just finding excuses. And I was surprised, she knows all about me being disabled after all? So, a bit taken aback, I told her itâs a normal thing for me.
âBut you got the diagnosis now, arenât you better?? I thought youâll get better nowâ
She was honestly surprised and it made me realize a thing. They donât get it. They donât get that getting diagnosed only equals benefits like welfare or parking spot for us, and sometimes better pain meds but that is just like pushing luck. That itâs a forever thing. That that one day we felt good a week ago was just a bright spot and doesnât mean we wonât need our aids anymore, cause chronic illness is not linear and will make a great comeback in next four hours, and the next good day is planned on when weâre 70. Cause when abled people are sick, they get better. And our illness is just an excuse for them. And when we say we will never get better they think weâre being dramatic and pessimistic. And I donât think theyâll ever get it, cause to get it you need to live it. And I want my friends to stay healthy and not go through hell.
This is definitely okay to reblog and abled people are encouraged to reblog cause maybe itâll help others understand
Hello itâs me Lexa and this post is relevant again as I just had the Legit Same Talk with someone and I exhausted my number of fucks to give
more and more in this world i am confused and astounded at the complete lack of ability that so many people have to just listen, and trust the speaker. (trust the speaker = accept that what theyâre saying is real and valid, not second-guessing that they just havenât figured something out yet)
when someone tells you of their experience, you listen. donât assume you understand. donât assume that itâs similar to what youâve experienced.
go into it with the mindset of âthis person is from a completely different world and i wanna learn what thatâs likeâ - thatâs the only way you learn and understand.
please. there is Actual, Real Suffering in this world, and it doesnât need to be added to by way of you not being willing to listen to and try to understand anotherâs experience, for the love of the gods.
someone suffering from chronic pain does not need your clueless ass making their day/life just that tiny bit more difficult by not even trying to understand.


























