Iām ready to Marie Kondo this fucking body. This spine does not bring me joy
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we're not kids anymore.

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NASA
Not today Justin
I'd rather be in outer space šø
DEAR READER

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@theanxietydemon
Iām ready to Marie Kondo this fucking body. This spine does not bring me joy

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Went for my first walk just for exercise this morning, and holy crow am I out of shape. I averaged 10 mins per km, and it felt the same as a moderate intensity run back when I was fitter. I hope my body will after a few more, or I might die lol
I havenāt posted much lately other than reblogs, but thereās a lot going on in my life so Iāll probably be a bit more active.
Shrot summary: Fibro symptoms have been worsening, my weight has crept up due to horrible dietary choices (trans fat laden snack cakes and unmeasured grazing on chips is bad news), and Iām struggling to keep up with the working I want to be doing.
So Iām working on getting my health sorted first by improving my diet, doing more low impact exercise, and defining set days for work and set days for rest, so I can hopefully avoid burnout. Iām going to try to post regularly with what Iām doing/how things are going, so maybe other chronically folks whoāre working on a similar journey or are looking for help can learn from my experiences.
Iāll tag posts with diet/weight talk withĀ ātw dietā and/orĀ ātw weightā so you can filter them.
The blue part is not nearly big enough.
me this morning: todayās the day i Get Stuff Done!
by 9 pm:
@spoonie-isms @positivity-in-pain

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lookā¦.full offense but Iām fucking done with this āthe person youāre meant to be with will make you angry/be a nuisance/fight with you/etc. etc. because thatās REAL⢠and being happy/content/generally satisfied/happy with the person youāre with is FAKE and NEVER HAPPENS!!ā mentality that everyone keeps pushing because you know this is just a gross mentality that convinces people to stay with someone theyāre unhappy/who isnāt good for them because theyāve been convinced that being sick of or exhausted by their partner more often than not is normal and even the goal in a relationshipā¦.
like we all criticize the āwe donāt wanna get married/Iām forcing myself/them to marry meā wedding cake toppers but nobody ever calls out the āwe canāt stand each other most of the time but that means itās Real Love⢠:))))ā stuff when thatās exactly the same thing.
yeah, getting on someoneās nerves is gonna happen. especially if thatās the person youāre spending most of your time with. but likeā¦..fuckingā¦can we stop telling everyone that irritation and annoyance and etc. etc. should be the norm??? that itās the Best You Can Hope For???? like. fuck dude. Legitimately considering yourself to be a pain in your partnerās ass and/or considering your partner to be a pain in your ass or just in general thinking that being unhappy/annoyed with each other 90% of the time is The Goal of a Real Relationship and is somehow proof that youāre the perfect couple is bullshit.
My husband and I are ārealā by having honest and respectful conversations. Itās not sugarcoated but itās not rude or mean either. Itās literally that simple. This toxic ābe with an asshole!ā mentality has caused so much divorce and toxic/abusive bullshit to run unchecked in my family and I had to retrain myself to not emulate that poison. I refuse to pass that on to my kids or to accept it from others.
When pushing yourself too far is an everyday occurrence, the lines between flare up and new normal get blurred
Acceptance
My mom āaccepts meā, but she āknows I only chose to be bisexual so I didnāt have to break up with my girlfriend when she started transition.ā
My dad āaccepts meā but often reminds me that āmonogamy is important no matter who youāre attracted toā because bi girls are more likely to cheat.
My girlfriendās mom āaccepts herā but wonāt use her chosen name and only uses the right pronouns half the time.
My pan friendās mom āaccepts herā but still calls her girlfriend her ābest friendā because she āknows my friend will find the right boy somedayā
A gay guy I met in class has parents that āaccept himā but when he said he was being bullied for his sexuality said that āhe should just be less public about it.ā
None of us have been kicked out. We still talk to our parents. They give us food and clothes and help pay college tuition. They havenāt threatened to kill us. They havenāt actually killed us.
They āaccept usā
But no they donāt.
Not kicking your kid out/not murdering them cannot be the standard of acceptance. Itās not accepting. Itās almost nothing.
If you want to be a wonderful accepting parent to a LGBTQ+ kid, you have to listen to what they say and trust them. You have to do your research and understand that this is who they are and itās not up to them. You have to do anything you can to make their lives easier because the rest of the world is already going to make them go through hell.
And if youāre not ready to trust your kid and love them no matter what, donāt call yourself progressive or accepting.
Youāre just a dick.
Someone: how are you coping so well with chronic illness?
Me: first of all, Iām not coping and Iām filled with existential dread, so jot that down
Just because someone else who has the same illness as you can work full time or do more than you can, doesnāt mean you can or should do more. Even people with the same chronic illness have different symptoms and severity levels. Try not to view other chronically ill peopleās lifestylesĀ asĀ āproofā that you should be doing more. DonātĀ feel guilty for doing whatās right for your body.Ā

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Louder for the people in the back š£š£
Also, who can afford a house with a garage these days?
āwhat the fuckā is an emotion now and its the only one i have
ok very funny guys. you got me. now seriously who left all these neurotypicals in charge of the mental health field
who left all these healthy doctors in charge of the hospital
is literally what this sounds like
God, can youĀ imagineĀ howĀ awfulĀ that would be? People with amputations consulting on things like prosthesis?
People in wheelchairs designing living and working spaces for people with mobility issues?
Autistic people actually trying to help other autistic people?
OMG, just thing ā wouldnāt ti be awfulĀ if people who are now in remission actually helped manage the pain and other symptoms that come with having and treating cancer?
I mean seriously, what on Earth do any of those people really have to add to the discussion? What could they possiblyĀ know that an able-bodied neurotypical wouldnāt already know? I mean, experience doesnāt teach all that much!
/endĀ sarcasm.
My care for EDS got radically better when my doctorās kid was diagnosed.Ā
my body: hmmm, maybe you shouldā¦not do that
me: do what?
my body: ā¦
my body: ā¦
my body: ā¦
my body: ā¦anything
what a day!!!!!!!! nothing happened and i was tired

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Happy egg day!
i literally never force myself to do anything thats probably my biggest problem abjzsdgdhdj
me: ugh i dont want to do that
brain: dont do it then
me: canāt argue with that
*unless someone tells me I canāt, and then Iāll move heaven and Earth