Hard wired embedded irrational anger for this moment 50 years & counting. PUT YOUR ARMS DOWN SHAUNY #bigsisterproblems
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Hard wired embedded irrational anger for this moment 50 years & counting. PUT YOUR ARMS DOWN SHAUNY #bigsisterproblems

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Hey, Spring.
Holy skinnier 1980s, batman. Had no idea this picture of my sister and I existed.
Iâve been waiting for that moment when everything began to feel real. Even though Iâm experiencing it, even though Iâve had the conversation with my parents, my boyfriend, my two oldest best friends, my employers, and even though I have started a YouCaring campaign and written about it on the internet, it didnât feel real until I got this text from my expatriate college friend:
My heart aches learning all of this. I canât imagine what you and your family are going through. I know Iâm far away, but if you need anything, Iâll always be here for you.
That was when it hit me. I donât know what about that made it be so, but it was.
We played Gin today. We watched The Golden Girls on my fatherâs chrome book. She has wires everywhere, rashes covering much of her skin, bruises from all the needles that have poked her. Every once in a while she moves her lines to the side and says âThis is such fucking bullshit.â I have to agree.
The moments between taking care of my family and attempting to stay present with them were spent searching for what I wasnât sure I wanted to know. I couldnât google my sisterâs cancer. It didnât find anything. I had to read PDF files of medical journals to get the answers to my questions.
3%. 3% of the people with my sisterâs type of cancer survive the next 5 years after their diagnosis. Nowhere said how many survive the next 10.
My sister is 23 years old, and science is 97% sure I have already outlived her.
https://www.youcaring.com/leahhafezi-782042
I donât want to make anyone feel as though Iâm forcing an ad campaign down their throat, but each time this link is shared, someone I have never met contributes to our fundraiser. Thank you for that. Thank you so, so much.
My sister doesnât know the extent of her diagnosis or prognosis yet. Sheâs asked her team of doctors and nurses to please speak with us instead of her. She isnât ready to hear it, and when she is, my mom will likely be the one to tell her (I canât tell her. I can barely tell myself).
Health insurance is still pending. Even when it gets approved, itâs Medicaid, and that alone will not cover all of the tests, procedures, transfusions, and chemotherapy. It will be better than zero health insurance, but not the same as having full, private health insurance. We live in a country where access to affordable healthcare is a privilege, and she doesnât have it.
My parents are devastated. I would like to try not to bankrupt them as well.
Every time you spread the word, it helps. I wouldnât ask for myself, but I have to ask for them. Thank you.
Hills alive: Sound of flurries.

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Came fer learnin bout getting some chooks. (at Ace Hardware)
Was there a wrinkle in time?
In fake meat BLISS. @impossible_foods
Obligatory &tc
Bridge & the house.

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Torture Center Detritus from the knee and elbow down, only, so the Yeti can go out to play. Good GAWD the fuss.
H3LL: what is this fresh?
Can't ditch work cos a Deaf girl needs me, but SOLIDARITY.
Deer or squirrel...?

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Great day to wear red.
Just smashed the hell out of the first tick this year. TOO EARLY.