Not feeling my best today; couple of bad seizures and spasms and the polyps in my womb is causing awful tummy pain, and got bad pain in general. I’m thankful for cwtchy blankets and Disney+ !! #palliativecarewarrior #notmybestday #livingwithepilepsy💜 #spasmssuckass #chronicpaincankissmyass #gratefulforblankets #gratefulfordisneyplus (at Llansamlet) https://www.instagram.com/p/B-SA-5Nj35T/?igshid=jaihckg8m6je

It’s 2.50am and I am absolutely knackered but utterly unable to sleep 😭 my pain is awful and I’m trying everything... I’ve tried, in this order; - enough lavender oil to knock out an elephant - eucalyptus oil (good for relaxing spasming muscles) - my night time meds - Pukka nighttime tea - three hot water bottles - music - reading - pissing about on Pinterest and tumblr - morphine - buccal medazalam and sublingual fentanyl - more morphine - tea - cuddling tigger - planning my outfits for various upcoming outings and events - looking at photos on my phone that make me smile - planning my baking tomorrow - watching my star projector - making groaning noises that probably sound like a ghost but help me deal with the pain - swearing at the ceiling and my shitty body ... and NONE OF IT IS WORKING! Send help! #cantsleep #chronicpainsucksass #spasmssuckass https://www.instagram.com/p/B51fGnZhyXR/?igshid=gncm9kgd6yn4

It’s 2.50am and I am absolutely knackered but utterly unable to sleep 😭 my pain is awful and I’m trying everything... I’ve tried, in this order; - enough lavender oil to knock out an elephant - eucalyptus oil (good for relaxing spasming muscles) - my night time meds - Pukka nighttime tea - three hot water bottles - music - reading - pissing about on Pinterest and tumblr - morphine - buccal medazalam and sublingual fentanyl - more morphine - tea - cuddling tigger - planning my outfits for various upcoming outings and events - looking at photos on my phone that make me smile - planning my baking tomorrow - watching my star projector - making groaning noises that probably sound like a ghost but help me deal with the pain - swearing at the ceiling and my shitty body ... and NONE OF IT IS WORKING! Send help! #cantsleep #chronicpainsucksass #spasmssuckass https://www.instagram.com/p/B51fGnZhyXR/?igshid=gncm9kgd6yn4

Apparently, it’s become A Thing that I’ll end up travelling home from hospital after a life threatening spasm-seizure in my Carr’s coat 🧥! Thanks for the lend, Sue! And thanks for being fantastic yesterday 💖 #wenttohospitallastnight #iwentonanadventure #ilivedbitches #spasmssuckass #seizuressuckass #mycarerisawesome #carersareamazing #wearingmycarerscoathome #blessherheart (at University Hospital of Wales) https://www.instagram.com/p/B0_teZvhTY-/?igshid=iefhwuy0bcj

Tonight is my second night in a row having a horrible back spasm. Would like a new body, please and thank you! #chronicpainsucksass #spasmssuckass #backspasm #palliativecarewarrior #tiredofthisshitmate #iwantanewbodyplease https://www.instagram.com/p/B04Kc7uBzMI/?igshid=ftl7b5iel80b

Me: I’m really spasmy/seizurey today... there’s about a 90% chance I’ll end up in hospital. Also Me: let’s wear the pjs that have lil hearts over my boobs! ❤️ #seizuressuckass #spasmssuckass #notwelltoday #wearingmycutepjs #spoonieculture (at Cardiff) https://www.instagram.com/p/BxVWvLgBXi1/?igshid=cm5nv68hrr8

Hi guys! Just letting y’all know I’m not ignoring you; I am not feeling so great today. I’m rather spasmy/seizurey and in a lotta pain today. I suspect that several very busy and emotional weeks have caught up with me. My plan is to have a very quick shower and go back to bed to hopefully sleep this off. In the meantime, the nurses are checking my Obs regularly and bringing me gingerbread green tea 🍵 and taking excellent care of me in general ❤️ I will do my best to message y’all back as soon as I can! #spasmssuckass #seizuressuckass #notwelltoday #helloobsmachine (at Cardiff) https://www.instagram.com/p/BxUt5v3hNvC/?igshid=1mvudi2dvzr2v

Going back to sleep for an hour in the hopes that it’ll be enough r&r for me to be at least a semi functional person today! #palliativecarewarrior #icouldntsleeplastnight #spasmssuckass https://www.instagram.com/p/BtiUmfYnO-Z/?utm_source=ig_tumblr_share&igshid=yregxibfx3tf