While it's none of my business, may I inquire about what ails you?
I’ve actually been pretty open about my illnesses (since it affects my commissions work and anything schedule related) so I don’t mind!Â
Some of them need a little explaining as to what they are, and it’s kinda a long list. I have alot of health problems.
Hashimoto’s disease is my main issue, its a type of autoimmune disease that causes hypothyroidism, aka, i regularly have to get blood tests and up meds to keep up with its fast progression. Not fatal, but its a fuckin pain in the ass i tell you.
Normally it isnt such havoc to deal with, but I’ve actually had symptoms of this since childhood, so I was ALWAYS being tested for thyroid issues, but nothing came up, so it was chalked up as whiny kid just complaining and faking sick for attention.Â
I went an extremely long time misdiagnosed because i had a rare variant of it that required a nonstandard test to find, (It’s called Test Negative Hashimoto’s, cause it shows as negative on general tests) so by the time i was finally diagnosed and put on meds, alot of damage had already been done to my body and there was no reversing it. If it had been caught sooner, I would never of become this sick, there’s even a chance it could of been stopped entirely. All it would of taken was one doctor to think to try the alternate test, instead of just blaming it on being a whiny kid.
As you can tell, I’m extremely salty about this.
Next up,
Ehlers–Danlos syndromes (EDS), I have the hyper-mobility type, which means my joints love to lock and dislocate over literally nothing. washing dishes? not anymore, now your fingers refuse to move. walking? hope you didnt need that knee to bend. again, its more annoying than anything. I do sound like a box of rice krispies whenever i move tho (snap crackle pop)
Fibromyalgia is also in the mix, this is a recent diagnosis since it was kinda hiding behind the EDS, since they have similar all pain all the time. Tho this has the bonus of hurting a fuck ton if you poke me, and pain in random places for no reason! Also I’m young and in a state that fears opioid/pain medication abuse so, all i get is some Alleve and a prayer!!!!
Irritable bowel syndrome (IBS) is also a newbie diagnosis, because it was hiding behind the hashimoto’s, which also causes digestive issues. Also I have the annoying version you can’t take medication for, I either strictly control my diet or i fucking suffer. I’m basically in a constant state of, the more they treat, the more they find wrong, which is not great.
Last up is Circadian rhythm disorder, aka, I was born naturally nocturnal. And no, it is not a matter of a strict schedule and some melatonin to fix. Been there, tried that. Because of the life long sleep issues (i was literally like this as a baby), i’m prone to insomnia if my natural sleep is fucked with, with the bonus of getting super vivid hallucinations! FUN!!! So yeah, I fuck with that as little as possible. It does what it wants, and I’m just along for the ride.
AND WHAT AGGRAVATES AND MAKES ALL THESE THINGS WORSE??DRUMMROLL PLEASEEEEEE~!
STRESS. STRESS IS WHAT MAKES IT WORSE.
As it is, i already have Anxiety + ADHD (or High functioning Autism, as my doctor recently realized it might actually be??) so bad its like i have boss music playin 24/7, so my very spanish soap opera like family who loves to find trouble no matter where they go, makes it very hard to NOT be stressed. Which means my health very often spins out of control. And when its out of control, they all eat into each other.
Which results in an extremely shit a immune system, pain, dangerously low amounts of sleep and fevers on a weekly basis.
None of it is fun, its very complicated and just an all around not great time.
Thanks for coming to my TED TALKÂ














