#savingeliza

hello everyone! i was just sharing this in the hopes of saving a wonderful girls life. Eliza Glenn O’Niell was diagnosed with Sanfillipo Syndrome-Type A.

“Eliza and other children with this disease are missing an essential enzyme for normal cellular function. Over time, a toxic material called heparan sulfate builds up in their brain and body leading to severe disability and death before they even reach their teens. This disease affects both genders, all races, all countries and continents. It is everywhere and the world needs to know.”

This girl almost has enough funds to get the proper treatment, and I think by spreading the word we can help save this sweet girl. 

http://abcnews.go.com/Health/family-break-gofundme-record-save-child-rare-disorder/story?id=23963169

http://www.gofundme.com/ElizaONeill

http://abcnews.go.com/blogs/health/2014/04/28/boy-7-makes-heartfelt-plea-for-help-to-fund-sisters-lifesaving-cure/

A little girl needs your help!!!

Eliza has Sanfilippo syndrome type A, a rare genetic disorder that causes a deadly buildup of heparin sulfate in her cells. Soon, Eliza will lose the ability to speak, her parents say. After that, she’ll lose the ability to walk and then she’ll develop seizures.

Most children with Sanfilippo type A don’t live far into their teens.

All varieties of the disease affect one in 70,000 live births, according to the National Institutes of Health, but there is no cure.

Your Daily tinnituzz @ http://www.tinnituzz.com/eliza-genetic-desaes-rescue/

4 Year Old Eliza Was Diagnosed With Rare Genetic Disease. Parents Were Told That She'll Fade Away Before Their Eyes. If Not THIS Rescues Her!

Our Editor in Chief DL Cade and photographer Benjamin Von Wong recently teamed up to try and create a viral video and help save this little girl's life.