Info time: Diabetes and related issues [this is long but I highly suggest reading]
Do you ever see something and you go "that doesn't sound right, but I don't know enough about diabetes to dispute it"? Well, I can help you there. I can help you know enough about diabetes to dispute it if need be. Especially because well, there are seemingly a lot of scams going around where people claim to be diabetic [in my experience it's maybe 3 scammers that just remake] and the information is not very correct in most cases. Not to mention this type of scam pisses me off because I am in fact diabetic, and not only are people preying off of others' lack of information about the chronic condition, but it's also trivializing a serious lifelong condition that can be fatal. If you have now or have lost a loved one to diabetes complications, you are already aware of how dangerous it can be as well as how dangerous misinformation is as well.
What is diabetes? Diabetes is a chronic condition related to the endocrine system- the pancreas specifically. However, if complications get serious enough other parts of the body will be affected. In type 2 diabetes, the body's cells have become resistant to insulin, which is a hormone produced by the pancreas that allows cells to use glucose from the blood- your body's energy it needs to function. When someone is 'type 2', the food that person is eating is not able to fuel them, regardless of caloric content. Glucose is commonly called "blood sugar". It's a type of sugar that is processed and then transported via the circulatory system to your cells where it's needed. With type 1 diabetes (which used to be called "juvenile diabetes"), the pancreas does not produce any/enough insulin for some reason or another, generally because of autoimmune or other damage. [For me personally, I was diagnosed as an adult and had to have it confirmed as type 1 due to the presence of autoimmune antibodies, also apparently my pancreas hadn't quite given up at that point.] As we've seen before, insulin allows your body to use the food you are putting into it. As a double whammy, you can have type 1 with resistance, so not only is your body not producing any/enough insulin, what's there can't be used properly. [RIP Spider who has this] So to explain the effects, think about what happens when you're literally starving. Now imagine that's happening no matter how much you eat. Your body may go into starvation mode and store fat. This can be misleading, which when combined with fatphobia has people concluding that "well, you have diabetes because you're fat, duh". Heck, I have/had diabetic relatives who believed that eating too many carbs will automatically cause the condition because that's what everyone is told/assumes. Eventually, you'd starve and your body would start deteriorating as so. HOWEVER because you would have so much glucose that just sits there because it can't be used, your kidneys are going to work overtime to try and correct this- and they can't do it alone. Your liver can also suffer severe damage. That's not to mention a whole host of other complications that can occur.
So what about it? Well, obviously there are treatments. Insulin injections have existed since the 1920s. There are also medications that can help your body actually use the insulin it's being provided, be it naturally or artificially. So yes, people with diabetes are dependent on prescriptions to survive. My grandma lost a sister in childhood due to insulin treatments apparently not being available in the extremely rural area they were living in at the time. More recently, the israeli occupation has banned insulin from being distributed to Palestinians. [Insulin has also been used historically in psychiatric hospitals to force low blood sugar in psychiatric patients, but that's a whole other rabbithole about psychiatric abuse.] There are resources for the US and beyond if you or someone you know and/or love are in dire straits financially and need help with insulin or other diabetes medications/ related medical help. That's only one aspect of treatment, though. Because pain, stress, hormone changes, other medical issues, and plenty of other factors can raise your blood sugar to dangerous levels, other kinds of treatment to manage other factors may be necessary.
Now that that's out of the way, let's get to specifics. So the most common problem you're going to see mentioned is high blood sugar. We've already covered what the effects are, but what is considered high? For the most part, "high" is 200 milligrams per deciliter. My CGM (continuous glucose monitor) lists "high" as anything 181 or higher but stops giving an exact number after 350. This is why I had a good laugh that time I saw a scammer using an image of a meter reading glucose in the 120s- that's good blood sugar. If you're going to get even more specific you want your pre-breakfast blood sugar to be 80-130. So when you see an accompanying image reading in the 500s, that's extremely dangerous. That's "you're in danger of going into a coma" dangerous.
Insulin pricing? How come I'm seeing people saying they need $300? In the US, pricing cap was set to $35 somewhat recently. What this means is that per insulin pen (as far as I've experienced, the above-linked resource post should have links with better clarification) it's $35. Can't be more than that for one pen. How many doses that provides is very up in the air. It absolutely varies from person to person. I have relatives with type 2 that have to inject a dose of very long-acting insulin weekly, one has gone back and forth with daily doses on top of that. I'm type 1 and have to take one dose of long-acting nightly with injections of a short-acting insulin before every meal, with the exact dosage amounts varying per meal. Insulin is measured in units (there's probably an actual mL amount, both of mine are 100 units per mL with a 3mL pen). How many units someone needs is determined with their medical provider (or care team? When I went to 'diabetes education' after diagnosis I was set up with a "care team").
Edited:
["...pharmacies can refuse to split boxes of insulin pens depending on company/store policy. so if someone lost their insulin and needed to get a replacement because insurance wont pay for more, the pharmacy could make them get a full box of three or five pens."]
via: anon ask (thank you much!!!) So it turns out that yes, with $35 being a cap it would very much likely be for EACH pen, with 3 being $105 in this case and 5 being $175.
But at any rate, if someone is in an emergency situation in the US should be able to get an insulin pen for $35 pretty much when they get to a pharmacy [again, from edit: no, not every pharmacy]. Yes, I get that this can be difficult in some situations, but that's outside the concept of insulin prices.
If someone's blood sugar is over 500 though, they almost certainly need a hospital more than they need an insulin pen. Yes, alright, the actual real single mother on twitter who was the source of the profile images/meter images that whatever the current url for vero-og has stolen and been using for months... that was actually months ago and I'm sure she doesn't need to be told to go to the hospital right now. [That said, if you get an ask from someone and the url is a variation off of 'vero-og' that is a confirmed scammer.] And then on top of that, yes, why would you block people that can get you free or discounted insulin? If someone was offering to save your life for free or find you what you need for far less than what you were expecting to spend, why wouldn't you take it? Unless what you're actually after is money.
SO TO RECAP: Insulin does not cost $300, $350, $370, whatever someone is sending you an ask about. In the US, it is federally capped at $35 per pen, with further resources available, as well as further resources being available internationally. If you need help, please be honest about it. I promise there are people who care, you don't have to try and explain yourself- but it absolutely does not cost that much and if it did, there are ways to lower the cost by quite a bit if there aren't resources to make it free. Diabetes is a lifelong chronic condition that is not caused by "being fat" or "eating too much", it is caused by your body not functioning right and your body can starve no matter how much food you eat. Unfortunately, people have been lying on this site for months if not years claiming to have type 1 with an insulin emergency. These people cannot possibly have diabetes, or they would be well aware that they do not need hundreds of dollars to get their insulin. They are counting on you not knowing this so you will donate to them. The 'vero-og' scammer had been harassing someone who donated and threatening them with the intention of bullying more money out of the donor.
