Feb 27, 2017
Patient advocate Shani Weber at the #RareDiseaseDay event held today at NIH. #ehlersdanlossyndrome #rddnih #EhlersDanlos #RareDiseaseSupport
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Patient advocate Shani Weber at the #RareDiseaseDay event held today at NIH. #ehlersdanlossyndrome #rddnih #EhlersDanlos #RareDiseaseSupport
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Attendees at #rddnih wrote their #raredisease name onto a pail of @globalgenes jeans at the National Institutes of Health's celebration of #rarediseaseday. <3
So cool! @upliftingathletes brought football players from Georgetown, U of MD, and PennState for play dates with NIH pediatric patients at #RDDNIH #RareDiseaseDay