"You can get used to anything in life, even to being paralyzed. After a while, it just feels normal. Yet, sometimes, I still wish I could cuddle my dog."
Laura, 45 years old, affected by SMA

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"You can get used to anything in life, even to being paralyzed. After a while, it just feels normal. Yet, sometimes, I still wish I could cuddle my dog."
Laura, 45 years old, affected by SMA

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“The effects of a disease are not always visible. So when you’re walking down the street just don’t judge people too easily or too fast. There could be something like a rare disease hiding behind the person you see.”
Marlou. 23 years old, suffering from Fabry's disease.
"Barbies are annoying: they're so perfect that they end up making you feel like you're ugly!"
Rebecca, 8 years old, suffering from SMA
I have a Fragile-X son. In the back of my mind I’ve always had him. I realize now, I was just waiting for him.
Francesca, mother of Giuseppe, 25 years old, suffering from Fragile X Syndrome.
"Always believe in your children's potential. Stop thinking about their limits; they will find ways that we can't even imagine."
Donatella, mother of Matteo and Antonio, both affected by Fragile X syndrome.

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Follow day by day, the photographic journey across Europe that want to investigate the daily lives of those who suffer from a rare disease. The needs of patients, their hopes, their difficulties, but above all their joys and their daily achievements. Support us on https://kriticalmass.com/p/rarelives