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Went up to the hospital today for meeting w/ the parent and the palliative care folks. Power of attorney stuff is being arranged and they’re giving her a week or so left. Have to go back up tomorrow pretty early to actually do stuff, bc sundays nobody’s open.
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Ended up spending the day at the hospital and learned that they’re keeping the parent for at least 4 more days, probably more like a week, and that after that she’ll probably be placed in an inpatient facility of some kind for a while. We’ll have to see how things go, but its def progress.
Ugh, well the parent’s in the hospital. Spent 12hrs from 6p to 6a up there with her. The place was packed, literally every bed was taken and they were setting people up in the disaster surge hall stations. One nurse told us they called a crisis and were having to divert patients to other hospitals, it was that bad.
The parent finally decided that she needs more care, thankfully, so that’ll be arranged at some point soonish. No idea if that’ll be in-home or at a facility.
taikuroba replied to your post: Drove the parent into the doc’s office today,...
Oh god, she’s refusing help? I thought it was a matter of accessibility.
Partly it is, in a couple ways. The house needs ramps at the very least and in-home help will be expensive, probably.
But she’s also fucking stubborn and refuses help until she literally can’t refuse any more. She’s had a walker for months and is just now starting to use it, for example. It was the same with the cane, ages ago. She hates relying on anything and anyone and then gets pissy about not getting help. Case in point: She refused to let us drive or arrange transportation until today and she still won’t budge on arranging mobility accessible transport. It’s...frustrating.
Drove the parent into the doc’s office today, which was harrowing enough, but then she fell trying to get up a step into the house and we spent half an hour outside waiting for EMTs to arrive.
When we explained to her that this is why we need more help with her care and hey, I’m depressed, she thought that was a ridiculous idea because ‘other people manage just fine, I don’t ask that much of you, if you just tried harder and got up at 8am like normal people, everything would be fixed.’ And I’m just so fucking tired. -A
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Just had a bizarre conversation (re: minor argument) with the parent when we mentioned Black Friday where she told us she was ‘very worried’ bc all we usually ask for is fun stuff like games and books that interest us? And why don’t we ever ask for practical things, like a work wardrobe? Like shit, maybe because we like to use holidays to get shit we actually enjoy as opposed to socks.
We had to fight the parent to get the fucking dining table cleared off. It’s been covered in mail/her clothes/her sheets/her fucking who knows what else for literally months and she just refused to clean it?? Or let us clean it. That’s literally the only surface we can sew on, come the fuck on. We need to sew pj pants (bc our old ones are one giant hole), a cover for the machine, and those curtains she’s been griping about us not sewing, like?? Logic lady, do you have any?
