Jun 30, 2023
every single year i’ve gone on vacation to somewhere nice, i’ve been on my period. and it sucked so so badly every time. this is the first time it hasn’t stricken me yet and i REALLY want it to stay that way PLEASE..
Loading...
seen from United States
seen from Germany
seen from Singapore
seen from United States
seen from United States
seen from United States
seen from United States
seen from China
seen from United Kingdom
seen from United States
seen from China
seen from United Kingdom
seen from United States
seen from United Kingdom
seen from United States
seen from United States
seen from India
seen from Malaysia
seen from United States
seen from Türkiye
every single year i’ve gone on vacation to somewhere nice, i’ve been on my period. and it sucked so so badly every time. this is the first time it hasn’t stricken me yet and i REALLY want it to stay that way PLEASE..
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch • No registration required • HD streaming
So, as badly as the Orilissa completely and totally fucked my body up, I really miss not having periods. To go almost two years without one, and now the last three months have just been excruciating.
My period started a week and a half late this morning and I just want to curl around a heating pad and cry but nope, have to mother all day. Guess I got lucky it’s one of the days Pea is at preschool and thankfully I just put Lily down for her nap so I get a break finally. But it’s too fucking hot for a heating pad so I’ll just cry because no doctor will recommend painkillers ‘in case I get addicted’ even though i’m in SO MUCH FUCKING PAIN 🙃
A very important read from the team Endo What? about the recent approval for Orilissa and where many endometriosis advocates and specialists
Orilissa - not as new as they want to you to think
I'm on Orilissa now, and it's awesome. I get my menopause in two pills a day instead of once every month or three. Being in menopause prevents my endo from growing and helps make the pain tolerable.
I'm writing this not to denigrate Orilissa but to let people with endo know that there are lots of people with experience with this sort of medication even though it's new.
Orilissa ads are everywhere, but there is one thing they forget to mention. They aren't the first drug that works this way, it's just the first time this medication was made into a pill. Depot-Lupron (another Abbvie product) and Synarel have been around for a long time.
Don't get me wrong, I'm glad to have Orilissa. It's awesome that this is now an accepted way of treating endometriosis. For decades I had friends, family and doctors question if being in menopause so long was safe, now Abbvie which makes Orilissa has gotten the FDA to say yes. I also think that a daily dose will decrease my monthly cramps which happened with every injection.
So if you are taking or interested in Orilissa, consider looking into people's stories about Depot-Lupron or Synarel. The experience won't be exactly the same because the delivery method is different, the dosages may be different, and all of us have different bodies - but you'll find information normally hard to get on such a new drug.
Cet été nous avons eu le droit à des articles putaclics : “Un premier traitement contre l’endométriose”, “Un nouveau traitement contre l’endométriose”. Parce que les journalistes n’ont pas fait leur travail et copié un communiqué de presse fourni par le labo commercialisant Orilissa...
J’ai donc fait la gueule une vidéo expliquant ce qu’est Orilissa et pourquoi on nous prend encore pour des courges...
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch • No registration required • HD streaming
Gonna keep careful track of my periods now that they're back woohoo yay my bone melting meds are not haha working like they used to
I have so much to do today but I just wanna lie down cuz my body feels like a glob of thick clay slowly melting in the sun
It is a no bones day
Nap before work
ADHD FOLKS WITH ENDOMETRIOSIS: if you go on Orilissa for your endometriosis and you take ADHD meds, definitely talk with your psychiatrist if you notice your emotional dysregulation is getting worse and your meds aren't working as effectively for working memory, processing speed, executive function, etc. You might need an increase on your ADHD med dosage. I'll elaborate below the cut
What many doctors often either don't know because they aren't specialized in ADHD or up to date on the research--as heavily biased as the medical system is toward cis male bodies--or don't care to tell patients because sexism, is that if your body runs primarily off estrogen and progesterone, your dopamine production is affected by your estrogen levels and the fluctuating levels throughout your cycle--this is why your meds often seem less effective around PMS and periods, and why the drawbacks of ADHD can and often do get worse after menopause
Orilissa puts you in an artificial menopause, or will at least significantly reduce your estrogen levels, and even with a low-dose combined birth control as add-back therapy, it can totally fuck your ADHD brain because it's cutting your estrogen levels so low. Therefore your dopamine levels are even lower than the usual low amount typical of ADHD
Personally, with Orilissa I've been incredibly irritable when I'm *usually* fairly chill, plus mood swings with intense anger or sadness, and my processing speed, working memory, etc etc got way worse than they ever have been. But I just got my Adderall increased after discussing it with my psychiatrist, and I already feel infinitely better. Feel like myself again. Feel like I can THINK again. Slight increase to anxiety but y'know, adjustment period. It should fade soon
One quick aside while I still got you: consider trying pelvic floor physical therapy. With a safe, trauma-informed physical therapist it can make a HUGE difference with pelvic pain. It sure did for me--no more spasms! It plus surgery and Orilissa have reduced my symptoms drastically, but my surgeon and gynecologist has always been upfront that the most longterm results he's seen come from physical therapy, and of course some people are too young to start Orilissa, and you can only take it for a couple years anyway
Endometriosis fucking sucks but hang in there, and always remember you have the right to advocate for yourself and don't deserve to deal with shit side effects for no reason when there are ways to reduce them
I wanna rant about one of several Orilissa-induced issues that pops up now and again. Putting in a cut for the sake of other people's dashes, tl;dr temporary food aversions?? For lack of a better phrase. And my husband being the amazing partner he is, believing me and helping me. Fuck Orilissa, yes even though it does cut down my pain a decent amount, fuck it still, and fuck endometriosis
Since I started Orilissa I have gotten strangely intermittent and temporary food aversions? I think?? Like not just nausea, because sure that happens too sometimes, but it's different. Even foods I love will be just... Completely unpalatable. And even though I'm hungry my stomach just feels like "absolutely do not put those normally delicious burritos in here, that's gross now for some reason"
At its worst, eating basically anything sounds disgusting as hell, but smoothies actually go down really well and they won't sound gross to me. Sometimes it's that only raw fruit or raw vegetables are okay as well as the smoothies, but literally anything else sounds absolutely repulsive. Sometimes a salad with a bunch of stuff mixed in is okay, even meat, but god it better be on a bunch of salad greens and primarily salad greens, and I'll probably use a lot less dressing or possibly none
If you feed me whatever's palatable and give me at least a few hours, I can eat normally and enjoy the smells and textures and such
I'm grateful I've figured out some options even when it happens but it's just. So bizarre. Because it happens just every once in a while, but it'll be just this intense disgust during those occasions
Is this what I have to look forward to with *actual* menopause, or what? And I'm sterile via elective bilateral salpingectomy, so I'm definitely, thankfully not pregnant
But fuck I'm extremely grateful my spouse is, as always, so supportive and just *believes* me when I'm dealing with yet another side effect or symptom. Like today a few hours after physical therapy (soreness, whoo) it happened again and he just goes "Food sounds disgusting again? I'm sorry, what does sound okay? Smoothie? Okay let's get one, you wanna come in with me or just text me what you want?" Add it to the infinite other reasons he's the best husband
And later this evening, back to normal, able to eat a late solid food meal
I just *hate* Orilissa so much I swear. I'm always dealing with fucking something from it. Literally, though: I have two rashes of stable sizes that started with me taking the medication and have never faded this whole time and *still* itch on and off. It makes my joints stiff and achy. Causes mood swings like literally uncontrollable sobbing. Worsens depression and anxiety. Worsens ADHD due to such low estrogen and how that affects my dopamine levels. So also makes it harder to deal with emotional dysregulation and rejection hypersensitivity. And now food issues?? It's just fucking exhausting on top of endometriosis. At least it does cut down the pain from excruciating to just agonizing at times so it's still worth it, but damn if it isn't a close call