actually tagging my last post reminded me--

if you're making a post about a disability you don't have, for fucks sake, please make or use a modified tag that IS NOT a community tag.

i get that you want to sort topics and make them easier to find on your blog or whatever, but if you misuse tags you are actively making it harder for people to find community.

avoid using just an asterisk or backslash or similar to modify the tag--these tags are usually even more explicitly for the community than the disability's unmodified tag is.

my personal go-to is 're: x', like, 're: intellectual disability', and i think ive seen 'includes: x' for fiction stuff. basically anything works if it's not used by the community. for some disabilities, you're fine just using the name of the disability as a tag, but for many, the name of the disability is the community tag. this is especially common, in my experience, with disabilities that affect cognitive/intellectual/neurological functioning. please err on the side of caution.

but no im not “cant decide” confused. im not “too much information” confused. im not “dont understand the language” confused.

im confused as in nothing is in my brain to be confused by. i have a void i can barely pull anything from. i dont know what time it is really and i don’t know what i just said. i get normal confused too!! but this is not not not the same!

using my power as a bitch with both hEDS and an SCI to tell people with hEDS to shut the fuck up about SCIs

hey! i'm crow&, and this is my blog for specifically talking about my spinal cord injury (atlantoaxial instability/AAI) and the way it's disabled me and impacted my functioning.

my blog is by and for people with neurological disabilities, neurocognitive decline/disabilities, and spinal cord/brain injuries. people with intellectual disability are also welcome in this space. details & reasoning are under the cut.

if you want a blog that allows a wider variety of people to participate, you can go to my general blog @crowpunkco.

i've been a cripple & activist for at least 4-5 years now, primarily disabled by hypermobile Ehlers-Danlos Syndrome and related dysautonomias, but my AAI became debilitating about a year ago. this is a space for me to talk about my experience with it.

what do you do when you have cognitive decline and you’re young? like, genuinely?

my memory loss isn't like ADHD or even dissociative memory loss, which is what people my age have context for. it's an extremely physical issue, and it affects my processing in very specific ways. it's hard to even explain it. it's hard to explain developing a stutter or sudden episodes of confusion that really aren't even a little linked to being neurodivergent when that's all people around you know.

ND amnesia tips and accommodations won't work for me. my memory loss can't be treated the same way, and neither can confusion or similar cognitive decline symptoms. but i also can't really articulate or figure out what'd work either.

most people with my experience are senior early dementia/MCI patients, and that just... isn't my experience beyond the confusion and memory loss. dementia tips also won't really work for me because that's not what i have.

i think i have vascular neurocognitive disability and i kind of want to just lie down and scream lmao.

i really really really want to talk to a doctor about this but my neurologist is super unresponsive* and i don't think my EDS specialist is familiar enough to help beyond telling me to see that neurologist so. wails.