Just sharing a #NoFilter selfie of myself after a few days of resting, recouping, trying to manage my intense, crippling pain that makes daily maintenance chores, self-care, work, socializing, maintaining relationships, writing, reading, generally being “productive,” difficult to impossible day-to-day. The concept of “usable hours” has been useful lately to explain what my life is like to non-disabled and healthy people: depending on the day, I have 4-6 usable hours to do everything I need to do: shower, cook, run errands, commute, work, attend meetings or medical appointments, write and read, anything. Healthy folks tend to have more like 10-15, depending on lots of factors. Y’all can work 8 hours and go out after. If I do this, I’ll be unable to leave the house for several days. Just here to remind y’all—my mostly-abled friends and colleagues—what life feels like with unpredictable chronic illnesses and severe pain and fatigue. It’s not glamorous, I am not lucky because I get to stay home, I am struggling to figure out my intellectual and creative ambitions on such a minimal capacity. If I am the only disabled person you follow or count as a friend, change that now. Follow sick and disabled Black and brown folks, trans and queer folks, fat, Indigenous, disfigured, crazy, immigrant, and autistic folks. Start by listening, asking how you can help, and thinking about others’ needs—not just your own. Reblog us, pay us, advocate for our inclusion when we’re not in the room—when you’re not getting a treat for doing the right thing. Thanks for reading, and to @dr4gon_femme for the face cupping inspo! | #AccessCenteredMovement #TheFutureIsAccessible #NotGettingWellSoon https://www.instagram.com/p/B3VKr2jFQHk/?igshid=128v1brfbz60h
