This is Megan. She's 16 and lives with neuromyelitis optica the same rare condition niamh our admin has. Go check out her newest video o er on PerfectlyKnitBeauty or click the link in her bio! @megan.woolf . . . #opticneuritis #demyelinatingdisease #transversemyelitis #neuromyelitisoptica #nmofamily #nmofighter #nmowarrior. #chronicillness #spoonielife

The neuromyelitis optica fundraiser was so much fun last night. It was amazing knowing all those people are helping in finding more treatment for my vicious disease. Ineven had a dance! Started in my wheelchair dancing with a few nmo patients and ended up me on my crutches dancing! Even if you're sick you can still do whatever you want you just need to do it differently. My body is paying for it today but at least I'm in pain for a reason instead of just nmo! - niamh . . . #nmofamily #nmowarrior #nmofighter #neuromyelitisoprica #autoimmunedisease #chronicillness #apoonielife #nmoukcharityball #masqueradeball #halloweenparty #fundraiser