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Last Wednesday, in honor of Blood Cancer Awareness Month and MPN Awareness Day, The Story Collider produced a private show in partnership with Incyte Corp. Each one of our storytellers was impacted by an MPN, which stands for myeloproliferative neoplasm (rolls right off the tongue in hosting, believe me), a term that encompasses a group of rare, chronic blood cancers that affect around 200,000 people in the US.Â
The view from backstage at The Queen in Wilmington, Delaware:
The stories were drawn from a documentary series Incyte produced with all of our storytellers as subjects, made by Academy Award-winning director Cynthia Wade.
Theyâre gorgeous, and give you a snapshot into each of their stories:
To say Amy and Scott are an active, outdoorsy couple is kind of an understatement -- they even met on the ski slopes. But when Amy gets sicker, they wonder if theyâll have to give up the things they love. Spoiler alert: Amy went sky-diving last week.
While studying to become a doctor, Taja becomes so sick she has to give up her dream -- even though you couldnât tell it from outward appearance. (âYou look fine,â her boss says to her at one point.)
Nick is diagnosed just after he finds out his wife is pregnant, and worries about leaving his young family behind.
Barbara, a scuba diver and ocean lover with a background in marine biology, has to stay out of the ocean for FIVE YEARS after her bone marrow transplant due to her suppressed immune system. She visits the beach and watches the other beachgoers enjoy the ocean, wondering if they know how lucky they are... until one day, she finally gets her chance to return...
This show really drove home how important it is to sign up for the bone marrow registry -- you could save the life of someone like our amazing storytellers! (In fact, Paula was already on it!) One of the storytellers, Scott, told me that these days, in most cases, the donation procedure is just a matter of getting blood taken, instead of the painful procedure it used to be. So there was really no reason NOT to do it. I signed up last night, on BeTheMatch.org, and theyâre going to mail me a cheek swab to return, so they can match me with potential donors in their system. If youâre moved by these stories like I am, I highly recommend doing the same! It took me only five minutes to sign up on the Be the Match website on my phone, and it felt great.
For once the ninja get to have the elemental powers all way through the season
Wolves, nuff said that are not evil just because theyâre wolves, Iâm so fucking sick of this. Iâm fine if they have a good enough reason to attack Ninjago, eg the First Spinjitzu Master took their land/he did something to them, would perfer if they were made to do it against their will or have some sort of corrupt leader (By will or some objects makes him corrupt, either one Iâm fine with)
Badass female (Preferably a wolf)
Wolf Jay nuff said
Lots of Jaya :3 (Otp heart <3)
Just in general lots of badasseryÂ
Coleâs mom
Before the ninja became ninja flashbacks
Return of the other elemental masters
Ed nâ Edna nuff said
Wolves end up on the ninjaâs side in the end
I know Iâm forgetting something but right now Iâm on a blank
(Just a little note down here, I really really really hate the word âwerewolfâ so thatâs why I never used it #antibigbadwolfstories)
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