#mis-lil-red

It's ramping up a bit, because the surgery for my daughter is booked for a month from now and so there is a light at the end of tunnel for her and hopefully it will give her a better life in the future.

IRL things have been a lot for me lately and I just haven't had the time/headspace to be as active. Plus, if I have an hour or two to sit at my computer, I'm usually using that time to write (or stare at the doc and force out 50 words LOL).

The IRL stuff is mostly about my kids, but I also have had issues lately with my own mood regulation and other issues. Turns out I have Premenstrual dysphoric disorder (PMDD), which I tell people is basically like PMS but on Liver King levels of steroids. I think I've had symptoms of this for a couple of years, but its recently gotten much worse and I have seen an endocrinologist recently and started a treatment plan that will hopefully help, but it will take a couple of months before I will see any results.

I don't generally talk publicly about my family. Mainly because I feel like my blog and writing is my safe haven, a place for just me. But there has been a lot going on lately so maybe it will make me feel better to talk about it real quick. A lot of people who I talk to in chat/DMs already know most of this anyway.

Both my kids and my husband are on the Autism Spectrum.

My son is 13 and just started high school, so that has been a tough transition for him. He has been involved in a couple of incidents that has resulted in his suspension. Supporting him through that has been tricky and dealing with the school and trying to get the right supports in place for him has also been a slog.

My daughter is 8 and she requires a lot of support at school. She really struggles at school and so there is a lot of time spent ensuring she gets the supports she needs. On top of that, about 6 months ago she had a tonic-clonic seizure that was quite serious and lasted for over 10 minutes. After some testing was then diagnosed with epilepsy, probably as a result from a brain injury she suffered during her birth (she had a lack of blood flow and needed an emergency c-section). So its been trial and error with meds, (she also has absent seizures which we noticed a few times) but after a while we thought things were okay. A couple of weeks ago, she had another serious seizure and we were back in hospital.

So yeah, while I'm okay and my family are mostly okay, there has been a lot going on for me IRL over the past few months that has obviously taken precedence. But, I'm still around when I can be. I still want to be around and still love to write and make gifs and stuff, but its just been a matter of priorities and a significantly limited free time compared to what I previously had.

I hope you are doing well! I hope you're going to have a nice summer break (if we actually get a summer... I know in Sydney its bloody cold so far!) And thanks again for reaching out. That was really sweet of you.