JOIN FIGHT! SHARE SHARE SHARE! #JOINHANDSFOREB #WEFIGHTEB #MARKYTHEROCK #THEWORSTDISEASEYOUVENEVERHEARDOF @WEFIGHTEB @CAUSETHEWAVETOHEALEB @EBMRF @EBRESEARCH https://www.instagram.com/p/B2zLhU0HJO1/?igshid=lm5rqlf6v04s

I know it may seem as if I am always positive and upbeat and constantly happy but the reality is every night I wake up in a sweat not once but several times a night because I haven't heard marky call out for me so I literally hold my breath as I turn the handle on his door until I put my hand on his chest and feel it go up and down and only than do I let myself breath. And its repeated every morning.... this is the reality of having already loosing one child to this horrific disease... I have depression..its just not a depression that can be handled with medication.... special needs moms are a different breed... not by choice but by circumstance... I will never stop fighting for my child..... so when you see me smiling ...see me laughing...see me with all my positivity ..its because God has given me one more day with my child..one more day of loving him..one more day of memories forever imprinted on my heart and mind.... #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf @ebresearch #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #memoriesareprecious #grateful #ebawareness #markystrong #markytherock https://www.instagram.com/p/B2y5048n0Ty/?igshid=9j6h8avvmukh

Excited to share the latest addition to my #etsy shop: Marky The Rock B3001 - Unisex French Terry Crew ! Fall is here y'all! show you're support and join the fight to find a cure! https://etsy.me/2kJ1MtI #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf @ebresearch #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #ebawareness #markystrong #joinhandsforeb #weneedacure #brotherstrust https://www.instagram.com/p/B2y186UHbai/?igshid=5zoki567anop

Such an amazing Sunday yesterday..cooking a birthday dinner for my oldest @michaelt92 and snuggling on my grandbaby...watching the love between Marky and Emma was just priceless...#forevermemories #lovingemma #wefighteb #markytherock #theworstdiseaseyouveneverheardof #livingforJesus #beinspired #joy #choosejoy causethewavetohealeb #markystrong #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #ebmomsquad #ebawareness #markystrong https://www.instagram.com/p/B2wRutPncAi/?igshid=1vs6f587opf0

@johnny_inspired this ones for you!!! The rino watching over his boy,!! #chargingrino #wefighteb #markytherock #theworstdiseaseyouveneverheardof #livingforJesus #beinspired #joy #choosejoy # #ebawareness https://www.instagram.com/p/B2typBtn6CU/?igshid=1hj3o3f296rvv

Saying goodnight to his boy❤ #markytherock #theworstdiseaseyouveneverheardof #wefighteb #cureeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #bullybreed #bullysofinstagram #bullyblessed #abkc (at La Quinta Inn & Suites Shawnee) https://www.instagram.com/p/B2qMkSdHEDJ/?igshid=w6sz8tg0y41v

One of my favorite pictures of Marky and daddy @markthehammer1 ....Markys still layed up with torn corneas...which means days in bed in the dark with lubricant over the eyes for healing.... but all he's worried about is his brothers birthday and showing his dog in Oklahoma..... he never worries about himself always others.... my #superhero #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf @ebresearch #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #bullybreed #bullysofinstagram #bullyblessed #adventuresofmarkyandcephas #abkcbullies https://www.instagram.com/p/B2o_2vSnux2/?igshid=yluawx4uwa54

I told Marky this morning..My love you are so amazing still smiling after waking up in so much pain from your scratched cornea..and said " Mamma at least I woke up".... #lovewhatmatters #wefighteb #markytherock #theworstdiseaseyouveneverheardof @wefighteb @causethewavetohealeb @ebmrf @ebresearch #joinhandsforeb #weneedacure #markythehero #specialneedsmom #specialbooksforspecialkids #fighteb #fighter #beinspired #ebawareness #markystrong #specialneedsmom #momofahero https://www.instagram.com/p/B2mTKLfn_QJ/?igshid=1bu2zfgthkigd