#lymelight

do not edit. © lymelight

2017. 11. 01. 9:47

do not edit. © lymelight

Many thanks to @thetriibechicago for their write up of me that they posted yesterday! Special shout out to @00meeshelada00 for her perseverance in writing this story and finding a home for it, and of course many thanks to my sister in lyme @sam_fuehring for this powerful shot. Link in bio to the article. :) #Decay #Akenya #lymedisease #lymeawareness #lymelight #thetriibe https://www.instagram.com/p/BozZajHHVIY/?utm_source=ig_tumblr_share&igshid=fy2xv0tjwtwm

It is #LymeAwarenessMonth and I am embarking upon a very important project to raise awareness and spread information regarding this debilitating disease. Lyme disease (and the many other vector borne illnesses that often come along with it) is the fastest growing epidemic in this country. Hundreds of thousands, if not millions, of Americans are inflicted with this illness, but due to its complex nature many will never be diagnosed properly. Even receiving proper diagnosis can take years and dozens of doctors and by then the disease has progressed to a point that makes eradication difficult - I myself have been treating for a year and still have a long way to go. Most doctors and the medical community at large do not understand the severity of this disease and chronic lyme is often flat out denied by many health care professionals. Receiving proper treatment then becomes nearly impossible, especially considering that a lot of insurance companies don’t cover lyme expenses. This reality is a nightmare for so many people and on top of everything else, the invisibility of lyme leaves those affected feeling alone and completely misunderstood. This month I’m releasing my first single in years that will detail my emotional experience with this illness. A percentage of the proceeds from this song with go toward @lymelightfoundation - an organization that helps kids and young adults pay for medical expenses and that has helped and continues to help me immensely. I would not have been able to afford treatment without them, and even though I’m still in the middle of battling this beast, I want to help give back to a foundation that has already given me so much and that gives so many hope everyday. Needless to say this cause is super important and any media or press I can garner can save lives! If you have any media contacts (local, national, print, online, television, and radio) please send them to/connect them with [email protected]. Let’s end the myths and mistruths surrounding lyme and bring the truth into the light! 📸: by the lovely @sam_fuehring #lymedisease #lymediseaseawareness #lymeawareness #lymelight #akenya #chicago #fundraiser #decay

Thank you @oodiemohar for helping to spread awareness of #LymeDisease! Everyone, remember to check for ticks. I wish I had. @lymediseasechallenge #Repost @oodiemohar ・・・ Part 2/2 of my #lymesdisease challenge where I shine the #lymelight onto those with #limelife to spread #lymesdiseaseawareness . I hope you all like my cool mix between The #lymediseasechallenge and #Ninjaforacure to create #Lymeforacure ! Please try and post this challenge. No excuses!