#lupethereitis

I no longer make goals for myself; it sets me up for a crash of disappointment and a dip in self-confidence when I'm too sick to follow through. Instead I say my wishes out loud. Instead I make lists of things I'd like to do before the season changes, before the girls grow up, before I get sucked under another illness. I wished for a perfect summer night and the ability to withstand any pain that might keep me in bed; last night, that's what I got. #chronicillness #beyondtype1 #lupethereitis #outlivingit #firstdescents #asburypark (at Asbury Park Beach)