#libsybum

Yes! Woah, I’ve hardly ever met anyone else with EDS! That’s so cool!

I’m a CLEDS sufferer myself (Type 2) which is a very fun time :P By fun, I mean that I spend most of my time craving the release of sleep. And baths. Lots of baths

Hiiii :) 

libsybum replied to your post “Omg wait! So I’ve been so engrossed in your amazing fic I haven’t...”

Also, hi brain fog (do you know her?), I haven’t met many people with EDS before either! I have online and a couple of my doctors have it (which is super helpful) but you don’t come across it very often. Do you have any of the other related conditions (PoTS etc.)?

I had to google what POTS is, and it seems like it’s when you get a sudden spike in heart rate when you stand up that makes everything starry - which I do have, but always just assumed it’s because I’m 5ft 11 and built like a bean

I have a few co-morbid conditions that go along with CLEDS that are very very not fun. Big divots in my teeth, a weirdly arranged mouth, digestive issues. If I’m honest though, a lot of people I talk to about EDS seem to have a weirdly good grasp on all of the names of conditions they have co-morbidity with and stuff - I’ve never really thought about it too much. Like, I’ve known I’ve had it since I was very little, and so I don’t think about it much. I don’t like online groups that talk about it because the information there always feels weirdly scare-tacticy, like it’s full of people going “HELP IS THIS A SYMPTOM?!” and I just don’t vibe with it

Oh, you absolute doll!

Thank you! Maybe you’ve been distracted by the omnipresent monotony of life, slowly pushing you towards the gaping maw of the void as it consumes all?

Literally you and me both I may as well just add that to my bio ;- ; and thank you sooo much for the compliment! ♥