#igns2019

My mom came with me to the #igns2019 conference. Knowledge for patients & family is important. Even if you are new or old to infusing it is great to stay up to date with what information is out there to make your journey with immunoglobulin always a great one. Thank you @ignsorg for allowing all of us this opportunity. I find that most people who attend these are usually ones who are new or have side effects and I feel everyone can benefit from hearing each other’s stories at all times. #immunoglobulin #ivig #scig #sideeffect #piawareness #immunedeficiency https://www.instagram.com/p/B4I14K_Az37/?igshid=1sojrmp8ypda8

Sitting around waiting for the patient portion of the conference today. Bummed I won’t be able to see the #idffoundation booth since patient portion doesn’t start till tonight. Im very excited to have been invited to the #igns2019 conference which is located where I live in #lasvegas I’m always wanting to learn more to help others. #rarediseases #piawareness https://www.instagram.com/p/B4F1uimAGwD/?igshid=174jk3qnrckty

I’m off to the #igns2019 conference tomorrow. Thank you @tztheidfzebra for sending updates about great opportunities like this. Although this is actually in #lasvegas the photo was taken for another trip I recently took to see my doctors. I’m excited to learn more & be a voice at @ignsorg conference this weekend. I think the more I learn, the more I can pass on to my fellow zebras. I’ve learned with being #Rare that not everything I hear may not be for me but can help a fellow #zebra the #idffoundation has truly laid bricks down the road to a more positive & hopeful way of thinking about #piawareness I love our spoonie community. #ignationalsociety thank you for allowing patients to be a part of this great experience https://www.instagram.com/p/B4EUAK7AT4d/?igshid=13jqjmflno9xj