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Sitting around waiting for the patient portion of the conference today. Bummed I won’t be able to see the #idffoundation booth since patient portion doesn’t start till tonight. Im very excited to have been invited to the #igns2019 conference which is located where I live in #lasvegas I’m always wanting to learn more to help others. #rarediseases #piawareness https://www.instagram.com/p/B4F1uimAGwD/?igshid=174jk3qnrckty
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I’m off to the #igns2019 conference tomorrow. Thank you @tztheidfzebra for sending updates about great opportunities like this. Although this is actually in #lasvegas the photo was taken for another trip I recently took to see my doctors. I’m excited to learn more & be a voice at @ignsorg conference this weekend. I think the more I learn, the more I can pass on to my fellow zebras. I’ve learned with being #Rare that not everything I hear may not be for me but can help a fellow #zebra the #idffoundation has truly laid bricks down the road to a more positive & hopeful way of thinking about #piawareness I love our spoonie community. #ignationalsociety thank you for allowing patients to be a part of this great experience https://www.instagram.com/p/B4EUAK7AT4d/?igshid=13jqjmflno9xj
