Feb 28, 2019
#rarediseaseday2019 #showyourrare2019 #iamtsc #tsc #freddie #bexhill (at Bexhill, East Sussex) https://www.instagram.com/p/BubEHbnnZeJ/?utm_source=ig_tumblr_share&igshid=dk5t01kwizin
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#rarediseaseday2019 #showyourrare2019 #iamtsc #tsc #freddie #bexhill (at Bexhill, East Sussex) https://www.instagram.com/p/BubEHbnnZeJ/?utm_source=ig_tumblr_share&igshid=dk5t01kwizin
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Trumped!!
I glimpsed her red trump hat as I turned the corner to go out onto the main road.  She was dressed in shades and patterns of red, swinging her arms and walking in rhythm to her music, a constant companion.  The landlord’s dog Harry, a sinewy standard poodle, curly haired ball of energetic love, was walking peacefully beside her.  I called her name but of course she couldn’t hear me as she listens…
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The Child First & Always! Primary Children's Motto. Blood draw for Luke this am b4 his MRI 2 check growth his 3 giant cell astrocytomas in his brain. #tuberoussclerosis #iamtsc #pcmc #giantcellastrocytomas #saltlakecity #cambellshoes (at Primary Children's Hospital)
This disease snuck into his DNA and put us in a war we didn't ask to fight.
This disease snuck into his DNA and put us in a war we didn’t ask to fight.
Day 10 of Blogging for TSC Awareness
by guest blogger Dorothy Tebbetts  (Austin, Texas)
It’s that time of the year for “Tuberous Sclerosis” awareness. Last year I blogged our “story” of the diagnosis. Everything was new and unknown and scary, we were desperately praying for seizures to stop. This year, I have been having a hard time coming up with what to write. What is our story now? Is it a…
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