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Restocked! I started to take an actual inventory of all my medical supplies and figure when I would run out of certain items and set reminders on my phone to place orders but then I realized that was just taking OCD to the next level lol. I’m crazy but not that crazy lol. #autoimmunedisease #hsawareness #hssupport #hswarrior #mrsa #pseudomonas #hidradenitissuppurativa #woundcare #medicalsupplies
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Buying antiseptic cleanser by the gallon is just easier and more reasonable in price. I can’t use Hibiclens because of the red dye. This does not have the red dye. $44 a gallon is a really good deal. #antisepticcleanser #hidradenitissuppurativa #hswarrior #hssupport #iamhsaware #iwillnothide #woundcare #wound #autoimmunedisease #mrsa #pseudomonas #infection #infectioncontrol
Snapped a picture of this graphic explaining the veins and arteries in the leg in my surgeon’s office. It looks like a map to Florida to me. #healthhumor #veins #arteries #florida #hopeforhs #fibromyalgia #autoimmunedisease #hidradenitissuppurativa #hswarrior #hsawareness #hssupport #chronicpain #chronicillness #laughter
What works for one...
I’ve noticed something since joining back into the HS support community. I see a lot of people post about what’s worked to help them and none of the stuff I’ve ever tried has helped me.Â
I’ve tried so many things over the years with very little if any, progress. I won’t deny that it frustrates me that I just can’t seem to catch a break but I don’t feel jealous of my fellow HS sufferers.Â
I’m actually happy that there are those that have found relief from this dreaded disease. I feel joy when someone in the support groups talks about how they are having good days instead of bad ones.Â
I just hope that I can have some good days again. It seems like I’m having a string of bad days and just can’t shake this infection. I’m tired all the time and I have to admit that I’m a bit lonely. I have my family but I miss having friends to just stop by and chat a while. The only other face to face interaction I get is from my weekly visits from my home health care nurses. I consider them to be friends but they get paid to visit me. There’s a difference.Â
