The Week Following
(part two)
the following is a series of notes written by my mother of daily updates on me.
November 2, 2018 - huge mass found in chest, put on breathing machine and transported to westchester medical center. went straight to operating room, biopsy of mass - put in ctcu - put on bypass and stayed on breathing machine. took biopsy of bone marrow. started chemo.
November 3, 2018 - no change all day. heavily sedated. no chemo to brain until shes off ecmo machine. going to meet with oncologist tomorrow. brother flying in.
November 5, 2018 - you were a lot more alert today. you even gave Santina the finger !! still on machines. we met with dr. lim and he told us it will be a long road ahead but there is a very good chance your gonna beat this. your brother got here!
November 6, 2018 - dr. call for authorization to go in and check breathing pipe. said it opened up but you still need bypass machine so basically nothing was done about that today. slept all day!! got chemo treatment.
November 7, 2018 - you came off the ecmo machine and they were going to then try to take you off the breathing machine after we left, im so proud of you, finally some good news.
November 8, 2018 - called the hospital at 8:30a for update, they could not take you off the breathing machine so now they will move you to a medical icu. you came off breathing tube early pm, you did great! t-cell lymphoblastoma.
November 9, 2018 - great job today, you took a few bites of food and a few steps! they put in your piclines (there is a card for picline that you always have to carry with you). they should be moving you to oncology tonight. found some ugly stuff in bronchal passage. sent out for testing.
November 10, 2018 - you ate well, throat still hurting. took shower, santina and mike were there. chemo treatment today. santina went and bought you personal hygiene stuff to make ;you feel better.
November 11, 2018 - mrsa in bronchal passage, need i say more ...
November 12, 2018 - you had a good day, got blood clotthing meds. took,k shower, ate well.
November 13, 2018 - chemo day and spinal tap to check spinal fluid to brain.
November 14, 2018 - not feeling well today - had p.t.
November 15, 2018 - taking out pic lines and having a port put in chest.
November 16, 2018 - took scan of heart, not good. a lof of fluid in sac around the heart, probably caner cells. 4 ventricals of the heart, 2 work harder then the other 2 but because of the fluids pressing on the heart it is collapsing the 2 stronger ventricals. they will drain some fluids and test them, they will also leave a drain in her heart sac out of her chest. chemo day! update, removed 400cc of fluid and no drain put in heart!
November 17, 2018 - you had a uncomfortable day. everything was hurting you.
November 18, 2918 - good day, you even walked around the hall with santina. ct scan, need results, still havent taken out pic line.
November 26, 2018 - clot in lung and legs. lump on back. bleeding. chemo today.
November 27, 2018 - very week, lump on back is bulging disc. clot in lung and both logs. neurologist came in he will be running some test. chemo today in spine.
November 30, 2018 - lost all muscle in legs due to steroids.
