#hdstrong

To the San Francisco Bay Area Huntington’s Disease Community Please join the HDSA San Francisco Bay Area Chapter  Education Day in partnership with HDSA Centers of Excellence at Stanford Medicine and University of California, San Francisco.   It’s a FREE event and lunch will be provided.  Register here We Can Never Lose HOPE….  

Please unite with the HDSA San Francisco Bay Area Chapter in its 18th Annual San Francisco Team Hope 5K Walk & Fun Run. Come join the fun dressed as a Hero or Villain character. Amy Fedele, Huntington’s Disease Advocate, organized the SF Walk for years and before her was another family that kicked it 18 years ago. The goal for the SF Walk  is $40,000.00; last year we raised $36,000.00.  All…

May is Huntington’s Disease Awareness Month While my personal Huntington’s disease (HD) journey may be unique, it reflects the complex emotional and psychological aspects of living with the fear of Huntington’s disease. This disease not only affects individuals but also impacts entire families. Though I took the biggest gamble of my life and married John, who had an unknown HD gene status, for…

#LetsTalkAboutHD is a social media initiative during Huntington’s Disease (HD)Awareness Month in May to encourage families to share their experiences with HD… Post videos, stories & photos to social media using #LetsTalkAboutHD to educate the world about the devastating impact that HD has on families.  Lora and Phyllis I wrote the Marin (Cahoon) HD story in the memoir, Phyllis & Cindy Watching…

#LetsTalkAboutHD is a social media initiative during May, Huntington’s Disease Awareness Month, to encourage families to share their experiences with Huntington’s Disease (HD). Please use #LetsTalkAboutHD to educate the world about the devastating impact that HD has on families. Folks across America need to hear our Huntington’s disease stories so please share your Huntington’s disease story on…

May is Huntington’s Disease (HD) Awareness Month and HDSA San Francisco Bay Area Chapter is offering two (2) one-hour webinars on clinical trials that keep our HOPE alive and how to have the best life with HD. Huntington’s Disease Studies and Clinical Trial Updates Webinar  Tuesday, May 14th at 7 p.m. Join the HDSA San Francisco Bay Area Chapter in welcoming Dr. Cameron Dietiker (Neurologist,…

Good news for the San Francisco Bay Area Huntington’s Disease community. The HDSA San Francisco Bay Area Chapter has hired a part time social worker, Satve Ilango who will respond to phone calls, messages on a new local Huntington’s Disease Chapter helpline that anyone can access. Satve can answer questions about Huntington’s disease, local resources like a support group, refer to HDSA Center of…

We Need Your Support in the Fight Against Huntington’s Disease

Author Therese Crutcher-Marin After much discussion and evaluation, the Leadership Team of the HDSA San Francisco Bay Area Affiliate made the decision to move the  San Jose Team Hope 10K Run & 5K Walk to a 100% VIRTUAL event on Sept. 18.                        Even though we cannot meet in-person, please run/walk in solidarity with with the San Francisco Bay Area Huntington’s Disease community. …