I really need to get on that new medication they are trial testing. Subcutaneous Berinert. And instead of taking it when I am having an attack it would be preventative! So I could worry a lot less about getting attacks because I know I have the C1 inhibitor in my system. I wish my disorder/disease wasn't so uncommon (thankfully it is tho). The only reason I wish this is because so many people don't know about it and I think its really important that people be aware of it. 

If anyone reads this, and has hae, what do you do to relieve the pain other than hae medication?