#gotauti

When your mum takes a photo of you have a genuine full on strop about another day in bed to send to the hospice to make them laugh 😂 The conversation this morning went something like this; Mum: what are you doing today? Are you having another day in bed? Me, knowing my mum: is that a request, a suggestion, or an instruction? Mum: take a guess. Me: I guess I’m having another day in bed? Mum: correct! To be fair, I absolutely needed to stay in bed today; I slept all afternoon and could just about managed getting to the loo, eating and watching telly. Let’s see how tomorrow goes. #thatpalliativecarelife #bedrestsucks #gotauti #yesimhavingastrop https://www.instagram.com/p/CFS_YPtDmlv/?igshid=1vgjaquikrvrh

Guess who’s got another UTI 😭😡🙃?? Yup, me. Sent my urine sample to the GP this morning and the dip was positive, plus I’m very obviously symptomatic, so the GP and palliative care have told me to start antibiotics and we’ll check what the lab results are in a few days to make sure I’m on the right ones. Not a happy bunny, but at least I think I’ve caught it earlier than last time, so whilst I feel poorly, I don’t feel deathly unwell, and am actually still conscious and semi functional 😂! Maybe the cranberry capsules are helping too? Who knows 🤷🏻‍♀️ #gotauti #mybladderisalittlebitch #palliativecarewarrior #whatdowesaytothegodofdeath #nottoday #toobusytobeill https://www.instagram.com/p/CFH3jxHDVsb/?igshid=1qbw1lva6v029

Every cloud ⛅️ has a silver lining. In this case, the cloud is that I have a UTI; E. coli to be specific. It makes a nice change, cause my usual UTI bug is Proteus Miribilus, which is notoriously difficult to treat. E. Coli is usually easier (I say usually, cause, like, I his is me we’re talking about 😂). Palliative care rang this afternoon to let me know and see how I’m doing (not good, is the answer tbh 😂👍🏻 a 5/10). I’ve started antibiotics (we keep the ones I’m most responsive to in stock in the house for situations like this one) and cranberry capsules, and we’ve changed my paracetamol and buscopan from PRN to regular for at least a few days. The silver lining? Well at least now we know the reason for why I’m feeling so poorly, and it’s something treatable! This is good; part of me was wondering if this was just my new normal. I’m hoping after a few days antibiotics I’ll be driving my family mad bouncing around and bossing them about 😂! I’ve found it really hard the last few days; I genuinely just feel crap. My brain fog is awful; I just about remember my own name atm tbh 🙈😂! I’m so tired; I’m sleeping 8-9 hours a night, then sleeping 50% of my day away. My neuropathy is really bad too, especially in my hands and arms... it makes doing anything way harder. I’m really struggling to walk. And my pain is pretty bad, especially with some awful bladder spasms. I’m so poorly and exhausted I can’t do any of the stuff I usually do... no yoga, no dance, no walk with the dogs... I can just about manage a shower, and I need a nap after that. But I’ve been making an effort to find joy in the stuff I can do; sunbathing, naps in my book nook, listening to music, watching telly, cwtches. There is still a lot of lovely stuff I can do! If you’ve been in touch with me the last few days and I haven’t responded, please be patient. My brain is currently full of cotton wool, and my body is made of jelly; I just don’t have the energy to Do The Things. I’m hoping in a few days I’ll be back on top form. I really appreciate y’all checking in and being so supportive. It means a lot ❤️ #mybladdersucksatbeingabladder #gotauti #thatpalliativecarelife #poorlygal #yayforantibiotics https://www.instagram.com/p/CDSKvkyjWrF/?igshid=1q3spsculg1lj

Guess who’s got a UTI 🙌🏻 #mybladdersucksatbeingabladder #gotauti #palliativecarewarrior https://www.instagram.com/p/CDRaigFjJUt/?igshid=c1cquvfei9ic