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'Black, Queer, Disabled and Brilliant', Follow Eddie's Historic Voyage To Space
Once told he wouldn't live beyond the age of five, Eddie Ndopu now has a Masters Degree and is heading to space. MTV is shooting for the stars with Eddie Ndopu, who wants to become the first physically disabled person to travel to space. The music channel announced this week it will chronicle the young activistâs mission to the final frontier in early 2019. The news was announced ahead of the International Day of Persons With Disabilities on Dec. 3. Eddie Ndopu describes himself as âblack, queer, disabled and brilliant.â âI embody all of the identities that position me at a disadvantage in society,â the 27-year-old South African told NBC News. âBut I am turning that on its head.â At two years old he was diagnosed with Spinal Muscular Atrophy (SMA), an incurable condition that causes progressive muscle degeneration and weakness. His family was initially told he would not live beyond the age of five. Nonetheless, Ndopu felt motivated to defy all odds, thriving both academically and medically his whole life. He attributed his drive partly to his mother, who never gave up on him. There were definitely more challenges throughout his life. Despite education laws mandating education for the disabled, in South Africa a mainstream education wasnât guaranteed. In a 2017 United Nations report, 90 percent of disabled children in developing countries today never see the inside of a classroom. Last year, Ndopu graduated from Oxford in the UK, the first African with a disability to do so. Now, the disability activist only wants to break even more barriers, including going to outer space. Ndopu, who has spent more than a decade advocating for the rights of disabled people, sees it as the ultimate triumph that would prove to the world that anything is possible. Although people with disabilities are the largest minority group in the world, Ndopu laments how they are also the most âneglected and invisible.â His journey would not be without danger. Since space travel has so many risks, Ndopu might suffer from health complications. âThere is a very real risk that I may not survive the voyageâŚbut I am willing to take that chance, because this is a mission that is bigger than myself,â he said. âI am not scared of the launch into space; I am scared of what will happen if I donât see this through.â Ndopu said he also derived courage from the late Stephen Hawking, who suffered from Lou Gehrigâs disease. In 2017, the esteemed theoretical physicist was offered a free ride to space by Virgin Galactic founder Sir Richard Branson. However, Hawking died before he could achieve this lifelong dream. âProfessor Hawking had already started zero-gravity training, and he was in his 70s!â Ndopu exclaimed. Ndopu is hoping that after he reaches outer space, he will deliver a message from above Earth to the U.N. General Assembly, sending âa powerful message on behalf of young people everywhere who have ever felt excluded by society.â MTV cameras will follow him as he enlists an aerospace company to facilitate the mission and chronicle his thoughts and emotions as the launch approaches. The channel will also document his voyage and message to the United Nations.  Read the full article
this is a scream
âLate night thinking through: Perhaps the reason why non-disabled people canât seem to comprehend the violence of ableism and why disabled people ourselves have enormous difficulty articulating the trauma produced by that violence is because ableism operates as a force field of bio-power that ontologically structures the way in which bodies experience the world. Put another way, ableism can be genealogically understood as a coloniality of embodiment." - Eddie Ndopu
This Facebook status by crip comrade Eddie, during the wee hours of last evening, was met by a few amens as well as a request to explain some of the more academic vernacular - which was an exercise I took up & enjoyed over my morning coffee. Not just because I fancy myself as something of a translator, but because Eddie had already put (snazzy) words to what I have been meditating on all weekend, quite palpably.
To break this quote down (as i interpret the thought), he is referencing the Foucaultian analysis of the governmentâs concern with management/regulation of populations, and what implications this has had on âdisablementâ. he sees this as an integral part of the emergence and success of capitalism.
An entire system of regulation of bodies is supported by the notion of âprotection of lifeâ; a body, a life is understood to be a means of production (the worker). the unsuccessful body is rejected, and âfixedâ or discarded, in order to not drain the machine. this is an era that created power structures to colonize (as edie phrased) corporeal and metaphysical bodies (so ârealâ and also transcendent ideas of the body) without which, capitalism as we know it cannot exist.
With that in place, the daily and historical experience of ableism-trauma then becomes one that is near-impossible to define, because it is not an autobiography, but in fact, a single key note on an accordion playing a tune. by which i mean, that trauma does not actually exist (on its own); it is not to be understood at all.
This is the fabric that makes the administration of justice on crimes of ableism impervious - these acts can not be convicted as wrong if the society (as product of the system) cannot observe these acts. justice then, always already evades.
I went on to site the tragic and unnecessary death of Robert Saylor, and the lack of indictment of his murderers, as a good example of what is being discussed. Of course, more largely, and historically, we can look to eugenics and other such movements in various nation states.
The thing is, my disabled life and my crip existence are equally challenging to elucidate. Not to suggest âcrip existenceâ is under anything of a "banner of a collectivized ontology of identity," to borrow another Eddieism, but rather the communion present in spaces where the majority experience a disabled embodiment.
The truth is for me, it has never been a process of very much speaking. As Eddie rightly points out, the trauma is such that its very reality evades, therefore any procedure through which we are trained to assess trauma, is likely flawed by the same system that creates ableism-trauma in the first place. As in, what the fuck can I even say? Was it even real?
Kristeva is another wonderful theorist to approach here, and her Theory of the Abject. When I first began studying this French philosopher, alongside psychoanalysist Jacques Lacan, and two queer literary works that broached the mechanism of heteronormativity in structuralism, I was inevitably led in my learning to a reflection on actual life events, called from my memory at the point of defining of abjection.
âThe abjectâ exists in a liminality between the concept of the object and that of the subject. The explanation of abjection is given through metaphor - the visceral reaction that all humans innately possess towards surreal and âdisgustingâ things: the sight of a ghastly wound, a dead body, biotic decay, etc., the way we gut revolt, or shudder at things once subject, now cast outside of the symbolic order. The act of being made to face the abject, Kristeva presents, is inherently traumatic.
Trauma.
When I first read this theory, I understood it to name perhaps what has existed so far in my life as unnameable. I cannot help but refer to these events as dual traumas, as I understand myself in those situations to have embodied both the âwitnessâ and the âmangled corpse.â
It was a Thursday evening in the summer of 2008. I was stepping onto an elevator after visiting a friend in an apartment complex called the Charlotte Towers. The doors closed behind me in the empty moving box, as it began its descent toward the lobby.
The momentum was interrupted as the elevator stopped after the 8th floor to pick up someone on the 6th. The doors opened to a man who was mid-twenty-something who looked up at me just before stepping in.
And shrieked.
Now, I donât mean yelled or shouted. I mean, blood-curdling, terrified scream. He was looking right at me.
I had not even processed the noise before he shook and mutter âoh sorryâ, while remaining immobile. The doors eventually closed, resuming the metal threshold between us, as well as the elevatorâs lobby-bound journey.
The whole walk home I felt an dissociation overtake my body, not even certain if the encounter had even been real.
To say that this encounter is uncommon or even an anomaly would be perhaps the ultimate impossible falsehood I could challenge. There is just a scramble at the absence of metaphor. There was no slur, there was no sexual advance, there was no physical violence. There was only a scream. This also happened on Friday at 12:30am outside of Bathurst Station. But it happened a different way and the same way. I do not know what it is to discuss this event that is also many events with anyone other than myself, myself who is both traumatized and traumatizing.Â