#dam2017

💙 Dysautonomia and physical therapy 💙 . I have done more physical therapy over the years than I care to think about, due to my generalized hypermobility spectrum disorder. Something is always injured. But after I had to see the same physical therapist for the same problem (hip getting stuck) several times, he sent me to a physical therapy and Pilates combination studio. . That move has seriously changed my life for the better! . I was diagnosed with dysautonomia very shortly after I started there. Because of the dizziness I get when I move from sitting/lying down to standing, we had to alter a lot of exercises I was doing (and she was always watching just in case I needed catching). My physical therapist and Pilates instructor now knows quite a bit about dysautonomia (she's awesome that way) and has been instrumental in keeping me functional! . I have been doing Pilates based physical therapy every week for almost 3 years (it's out of pocket, but worth every penny) now, and I try to get one or two Pilates group classes in every week. Sometimes, I can only do the PT, but that's okay! . I truly believe this routine is what allows me to walk as often as I do, and is why I'm still as functional as I am. However, I do know I'm extremely lucky and privileged to have started so quickly, and know that if is had to wait for a year or more I wouldn't be where I am now. That's why we need awareness: so more people can start treatments earlier!!!! . Pictures: seated mermaid (I keep my hands loose due to nerve problems in my arms) & leg circles with a resistance band Videos: bridging (arms up to keep them out of video) & leg circles with a resistance band . Be sure to check out all my blog posts for #DysautonomiaAwarenessMonth by following the link in my bio! ... ... #DAM2017 #dysautonomia #MakeSomeNoiseForTurquoise #ChronicIllness #ChronicConditions #InvisibleIllness #MakeNoiseForTurquoise #PhysicalTherapy #Pilates #SeatedMermaid #LegCircles #ResistanceBand

Dysautonomia is an invisible and chronic condition, meaning people affected by dysautonomia look just fine on the outside. . Having an invisible illness is extremely frustrating in that we often get judged as being undeserving of accommodations we need. Because dysautonomia often impacts young people - preteens, teens, and young adults - people around us see a young, lazy person instead of a disabled and struggling person. . Sometimes, I'm fine. Sometimes, I need to plop myself down on the ground in public because I misjudged my ability to walk. Sometimes, I need to use the riding cart in a store because I can't walk that long and Dan can't push me and a cart. Or he's not with me. Sometimes, I need to use my own wheelchair - a transport chair - because standing still interspersed by walking makes me feel like I'm dying (no exaggeration). Sometimes, those cute knee highs I'm wearing are compression socks and are the only reason I'm still able to smile and carry a conversation. Sometimes, I've overheated when it's only 70°F (21°C) and am at risk of passing out. Sometimes, I'm freezing cold when it's 70°F (21°C) and need all the blankets and all the heaters. Sometimes, I'm just fine. ... Check out my latest blog post to learn more about dysautonomia! 💻 findinglifessilversun.wordpress.com/2017/10/04/what-is-dysautonomia (Or click the link in my bio and click on the post title: What is Dysautonomia) . You can get this sweatshirt on my Zazzle shop! It's super comfortable! 💻 zazzle.com/FindingTheSilverSun (Then click on "chronic illness" and you'll see all my designs! I do have dysautonomia specific designs too.) ... ... #DysautonomiaAwarenessMonth #DAM2017 #dysautonomia #POTSsucks #stopPOTS #MakeSomeNoiseForTurquoise #ChronicIllness #ChronicConditions #InvisibleIllness #MakeNoiseForTurquoise

Y así Fue nuestra experiencia en el #dam2017 Donde ganamos el "2do" lugar en "Senior Comercial Profesional" Muy felices y contentos de ser uno de los 3 mejores grupos al Nivel Nacional 💪 . Nosotros somos "Galaxxy Dance Crew " . On Fire 🔥🔥 @galaxxy_dc #movimientogalaxxy #dam2017 (en Concha Acustica de Bello Monte)

Activos en Caracas , Fin del día de hoy , Esperando el día de mañana y obtener buenos resultados 💪 . #dam2017 #movimientogalaxxy @galaxxy_dc (en Caracas City)

On Fire🔥🔥 #dam2017 @galaxxy_dc 👌

De regreso a la Capital🔥🔥 . Activos para asistir a #Dam2017 @galaxxy_dc #movimientogalaxxy (en Caracas City)