#cmt4j

My best friend’s cousin, Talia, was diagnosed with a rare terminal illness called CMT4J, or Charcot Marie Tooth Type 4J, which is a progressive neurological disease similar to ALS. Only 22 people in the world have been diagnosed with it. There is currently no cure, but scientists believe that gene therapy could hold promising results. Her family needs to raise one million dollars by the end of 2017 in order to fund the clinical trial which could save their daughter’s life — and the research of which could also save the lives of countless others.

They are halfway to their goal. There are three weeks left in the month of December.

I’ve only met Talia a couple of times, but she’s such an amazing, sweet, happy child. She’s a child in the sixth grade with her entire life ahead of her, and this trial could do wonders for her.

This is their website where you can donate: https://donate.curecmt4j.org/campaign/cure-cmt4j-advancing-gene-therapy-for-rare-diseases/c117605

My friend’s cousin Talia was diagnosed with CMT4J and needs help funding a cure. Here are some words from her: 

PLEASE TAKE A SECOND TO READ/WATCH

Talia, my friend from high school’s 12-year-old cousin, was diagnosed about 18 months ago with a neurological disease called CMT4J. It's similar to ALS and will be terminal if they can't find a cure. There are tons of possibilities with gene therapy, but unfortunately there isn’t much funding for it.

As a result, my friend’s family has started the Cure CMT4J Foundation, and they’re trying to raise $1 million by the end of this year -- but they’re only a little past $600k as of December 13.

To find out more about the cause or donate, go to curecmt4j.org.

I am asking (BEGGING) all of you to help my friend and her family by reblogging this to help raise awareness for the cause. Just getting the word out on here is helpful in itself, and if I could somehow get Taylor to see it (she doesn’t follow), I know she’d find away to help, be it by donating or simply helping raise awareness by reblogging/posting about it (either one, it goes without saying, would be endlessly helpful).