Nov 6, 2025
Being psychotic is constantly checking things to make sure youāre in this reality and you didnāt accidentally stumble into the neighboring reality where everything doesnāt make any sense again
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Being psychotic is constantly checking things to make sure youāre in this reality and you didnāt accidentally stumble into the neighboring reality where everything doesnāt make any sense again
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āOh POTS isnāt that bad is it?ā
Hereās a list of things that I have to deal with due to my POTS:
-I canāt drink regular water or I will get dehydrated because without sodium, it doesnāt stay in my body long enough to do anything.
-I canāt stand up without getting tunnel vision and my fingers and face going tingly
-I canāt stand up without hearing my heart rate skyrocket from the pounding in my ears
-I am very nauseous and dizzy constantly
-sometimes at night my POTS symptoms flare for no reason so I wake up with an extremely high heart rate, sweating, and dizzy
-also at night, if Iām having a flare, I cannot change positions in bed without feeling my heart pounding in my chest, even if the change is just rolling over in bed.
-standing at work or in lines for long periods of time feels like hell, it feels like my limbs get too heavy to hold, and I get lightheaded and dizzy after a while.
These are things I deal with that are POTS related specifically and not even a majority of my symptoms or the most debilitating of them either, I donāt have a severe case of POTS by any means either, things could be much much worse, so yes POTS is āthat badā
Why are people on the internet so upset about having different needs than other people?? Like yeah a wheelchair users accommodations are going to need to be different than someone with LSN autism for example. That doesnāt mean that the wheelchair user is āmore disabledā or ādeserving of the support moreā it just mean that the accommodations they receive are not the same as yours, because while a ramp into the building might help the wheelchair user, what the LSN autistic person might need is lower lighting for example (or sunglasses if that canāt be done). They are BOTH being accommodated just DIFFERENTLY.
Idk if I explained myself well in this post I just woke up and have a terrible cold
Well Iām unofficially officially diagnosed with hEDS (aka i qualify for the diagnosis but my doctor has to run the genetic tests to confirm itās not another type)
Iāve suspected it for 3 years. Basically treated myself as if I have it for 3 years. So nothing is really groundbreaking about this to me, all this means is I might be able to get back into PT and maybe get mobility aids covered by insurance instead of paying out of pocket for them.
Iām happy to finally have an answer to my pain, an explanation as to why Iām in pain all of the time.
āSelf diagnosing isnāt valid ever!ā
Shut up and just say youāve never experienced neglect, or abuse, or poverty, or medical gaslighting, or racism, or sexism, or any other kind of barrier that exists between someone and a diagnosis.
You had the ability to get a diagnosis, thatās a privilege a lot of people donāt have, and thatās okay. You donāt need to put other people down just because you canāt understand why theyād do that.
Most people who are self diagnosing spend months to years researching a probable diagnosis before ever claiming to have it.
And another thing, Iāve self diagnosed everything Iāve had, and then as the ability comes, I get it professionally diagnosed, and I have been diagnosed with almost everything Iāve self diagnosed with, itās just funds, waitlists , and medical team issues that are preventing me from getting an autism diagnosis.
Hell even my hEDS which I never really fully self diagnosed but suspected for sure, was true, I do have some type of EDS, Iām just waiting for genetic testing to come back.
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch ā¢ No registration required ā¢ HD streaming
Woah Iām still alive ! Surprise everyone! (itās not a surprise if you follow me outside of tumblr, I just forget this blog exists lol)
Sheās a long one so Iām putting a cut right here
Their eyes fall first to my hands, holding my crutches, then to my legs, trying to figure out if what is wrong with me, could happen to them. Their eyes never meet mine, they decide right before looking me in the eyes that they can move on, that what is wrong with me could NEVER happen to them, how theyāre so healthy. How theyāre not broken.
I want to tell them it can, I want to tell them this can happen to anyone, you could wake up tomorrow and be disabled.
I want to stop being a zoo animal. I want to stop being a circus freak for people to stare down. I want people so *see* me, not just look at me like a disgusting creature that doesnāt belong in society.
I want to be a human being to people again. Is that so much to ask for?
I am so sick and fucking tired of hearing āthatās just how it isā in response to a disabled person asking for someone to not do something that is harmful to them, or when asking for accommodations. It makes me so fucking angry. what kind of bad excuse for not including a flash warning, for example, is āoh well if you have light sensitivities then you should just not be on social mediaā (a real comment Iāve seen many times on peopleās posts.)
What do you mean you couldnāt take the three seconds to add a flash warning to a video, therefore making it much safer for many people. Therefore making the audience that can view your content that much bigger.
Why wouldnāt you want captions on your videos? It makes it accessible for people who need captions on spoken content AND it makes the amount of people that CAN watch your video much much higher, you have a better chance of getting more views
I donāt think things should only be done when there is a benefit to able people, I think that even if only one person would benefit from an accommodation then it should be provided and it should be protected. But it also helps people be more willing to start accommodating people when it also benefits them.