#avmwarrior

Going to order this shirt and stitch on today's date to remember today's miracle.

(So so proud of everyone 'including myself' involved in this - take a look)

Today is Rare Disease Awareness Day...

You probably look at me and think I'm a normal, besides wearing a whole lot of braces and splints. On the surface that may very well be the person you see, but unfortunately I'm a very different person underneath.

I have a Brain Arteriovenous Malformation (AVM) which occurs in less than 1/2 of 1% of the world's population. It is estimated that approximately 3 in 100,000 people have a cerebral AVM. I also have seizures, spastic hemiplegia, Anxiety, depression, chronic headaches/ migraines, scoliosis and other health issues that were brought on with this rare disease. Everyday can be a struggle both emotionally and physically for those of us who have rare diseases and chronic illnesses. Not every disability or condition is visible.

Just because my condition is rare, it doesn't mean that people living with this condition doesn't matter. Hoping to spread awareness in order to have more treatment options available to us as there are limits and very little knowledge about my rare disease.