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Same Sean. I canβt see out of one of my eyes either anymore sometimes... oh well π ππ» π€·π»ββοΈ #lifeisstrange2 #seandiaz #pensketch #avmawareness #trigeminalneuralgia #heds #ivegotmigraines https://www.instagram.com/p/CJZxS6DjcpF/?igshid=n1puodignbo9
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch β’ No registration required β’ HD streaming
@makeawishsnv #walkforwishes You can still donate to help make wishes come true. Link in bio! ππ« #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #walkforwishes2020 #makeawish #wishkid #walkwithme #wishwithme #payitforward #townsquarelasvegas #lasvegascommunity #vegas #hendersonnv (at Town Square Las Vegas) https://www.instagram.com/p/B9cLBxVn7h9/?igshid=1m34jjpxj0sbq
@makeawishsnv #walkforwishes #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #walkforwishes2020 #makeawish #wishkid #walkwithme #wishwithme #payitforward #townsquarelasvegas #lasvegascommunity #vegas #hendersonnv (at Town Square Las Vegas) https://www.instagram.com/p/B9cKlChnqaR/?igshid=1kyqs8lturxmr
Celebrating #rarediseaseday at the @lmhfoundation #vegasrare5k. #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #raredisease #showyourrare #showyourstripes #vegascaresaboutrarekids2020 #onehill #littlemisshannah (at Cornerstone Park) https://www.instagram.com/p/B9Kl433Hd4Y/?igshid=13oo60ga1dq5v
February 28 2019Β
(So so proud of everyone 'including myself' involved in this - take a look)
Today is Rare Disease Awareness Day...
You probably look at me and think I'm a normal, besides wearing a whole lot of braces and splints. On the surface that may very well be the person you see, but unfortunately I'm a very different person underneath.
I have a Brain Arteriovenous Malformation (AVM) which occurs in less than 1/2 of 1% of the world's population. It is estimated that approximately 3 in 100,000 people have a cerebral AVM. I also have seizures, spastic hemiplegia, Anxiety, depression, chronic headaches/ migraines, scoliosis and other health issues that were brought on with this rare disease. Everyday can be a struggle both emotionally and physically for those of us who have rare diseases and chronic illnesses. Not every disability or condition is visible.
Just because my condition is rare, it doesn't mean that people living with this condition doesn't matter. Hoping to spread awareness in order to have more treatment options available to us as there are limits and very little knowledge about my rare disease.
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch β’ No registration required β’ HD streaming
Beautiful in any light. #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #limoride (at Henderson, Nevada) https://www.instagram.com/p/Bt2gDQMgv3W/?utm_source=ig_tumblr_share&igshid=wie2cd9kgr8b
Doing spa stuff before we leave for Hawaii....in 33 hours. #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #makeawish #maui #hawaii #spa #facemask (at Paradise Hills, Henderson) https://www.instagram.com/p/BtfKAKKH283/?utm_source=ig_tumblr_share&igshid=we9pxnswym6j
Thank you to all of you that help to spread Lauren's story. I appreciate each and every person that raises their voice with me to find her a safe treatment. Awareness leads to research. Research leads to cures. #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #mlk (at Henderson, Nevada) https://www.instagram.com/p/Bs55tywHy4o/?utm_source=ig_tumblr_share&igshid=12hjdzqzhlz70
