#achilleuslewis

Birthday prep continues #killyturns5 #achilleuslewis #kingofallwildthings

This little man will be 5 in September. When he was 15 months old I was told he would have a 50% chance of seeing his fifth birthday and here we are months away! For those of you who know us and would like to attend his wild thing birthday party, dm me. I no longer have Facebook so I can't make an event asking for addresses so this is my attempt. We hope to spend the day with Killy being surrounded by his family (all of you attending are our family) celebrating his life and how far he's come. We will have something to represent childhood cancer awareness month and the party will be oncology friendly, hand sanitizers every where! So please do text or dm me with your address and how many adults and kids will be attending❤️ Cancer, you can't have my child. I think he's shown you that. You've tried to take him from me and you're still trying. Squatting in the middle of his brain waiting to pounce. Achilleus is stronger than you and he will beat you🖕🏻 #gbm #astrocytoma #childhoodcancer #achilleuslewis

Suh handsome dude #achilleuslewis #maverick #kingofwildthings #mysourpatchkid

Today marks the day our whole lives were turned upside down. February first 2013 Achilleus woke up at 4am choking. I quickly set him up, that's when he began to seize. I shouted for my mom. In the middle of saying her name it clicked and I shouted "he's having a seizure!" 911 was amazing that night. They talked me through the steps for taking care of someone during and after a seizure. They also kept me calm and I don't know how they accomplished that because I was a mess. I thank that woman for giving me the tools to remain calm because I haven't lost it in front of my child ever since that very moment. We got to the hospital where we thought he was dehydrated due to his sodium levels. In a few days, after many tests, cancer was officially used in the same sentence as my sons name. People may wonder why I put all of my business out here. Especially when I say I'm a private person (I really am. That's why posts are never too detailed but I'm trying to change that this year). I remember sitting in the hospital thinking "this is going to be hard, but his story needs to be used to help others." So here we are, 3 years later. Thank you all for supporting my little man. In good times and bad. Other parents, thank you for reading about Achilleus and insisting our kids be friends. You have given Achilleus light we never thought we'd see again. The 5th we will be having our traditional ice cream cake celebration because I refuse to make this day a negative one. I refuse to allow myself to be sad. Cancer has taken so much from us, I will not allow it. #childhoodcancer #braincancer #glioblastoma #astrocytoma #visionloss #achilleuslewis #teamachilleus #killystrong #achilleusarmy #achilleusthewarrior

Counts were too low for his last dose of chemo with kaiser. Now comes the waiting. The worrying. His tumor will now be untreated with scans every 90 days to see if it's growing. If it grows right after one scan and we don't find out until his next scan it will be too late. Praying hard that Maryland says yes. Please say yes. #gbm #braincancer #notfair #anxiety #achilleuslewis