#2017ggtribute

On September 17, I was honored to take the stage at the Global Genes RARE Tribute to Champions of Hope. I met some truly amazing people, and I marvel at your strength and selflessness. I left the stage with a soul full of inspiration and hope. Thank you for all that you do, and thank you Global Genes for having me.

Thank you @globalgenes for letting me join you last night to help honor the true Champions of Hope at the #2017ggtribute .It was such an inspiring evening meeting many courageous people in the Rare Disease Community. Thank you for all the work that you do.

So happy to be at the Global Genes Tribute to Champions of Hope #2017ggtribute #inspiring stories of hope

At the 2017 Global Genes conference, Rare Champion of Hope--Collaboration in Advocacy awardee Kari Rosbeck of the Tuberous Sclerosis Alliance, an Inspire partner. #2017GGtribute #raredisease #tuberoussclerosis

Looking forward to join @GlobalGenes tomorrow night at the #2017GGtribute honoring RARE Champions of Hope in the #RareDisease Community! http://bit.ly/2017GGtribute