PMG Awareness Organization, INC. pmgawareness.org

Despite the Corona virus pandemic, we were reminded today that there are good people out there! Our son, Sean, was born with a rare brain malformation called Polymicrogyria (www.pmgawareness.org). The disorder leaves him with many challenges including being nonverbal, but it does not stop him from his passion which is cars...loud cars...preferably with four tailpipes. Today, we would like to extend our heartfelt gratitude and appreciation to Russ Taylor, Hunter Swift, Soren Swift and the entire Skittlez Squad Exotics group for their drive by this morning for Sean. They put together a very large group of amazing individuals to drive by our home. They revved their engines up and put a huge smile on my son's face! They even handed him a few gifts! The last six weeks have been very tough for him with his world being turned upside down due to the virus. Sean is extremely social and finds such joy in going to school and being with his friends and teachers. He doesn't understand why he isn't going, why he can't see his friends and teachers, and why we are staying away from family. So we want to thank them all so much for their kindness and compassion and for blessing my son in this way today. It will be something he will remember always! Hoping the video I uploaded comes through so everyone can see how amazing these people are!! Check it out here! https://1drv.ms/u/s!ArOwqEN6Qrw4lGzr0tlaCsKbnBjf?e=T1hoR8 To learn more about my sons disorder (Polymicrogyria), please visit our website at www.pmgawareness.org. You can find us on Facebook at PMG Awareness Organization, on Instagram at pmgawareness and on Twitter at @PMGAwarenessOrg #pmgawareness #polymicrogyria #PMGA — with Rick Hudson. https://www.instagram.com/p/B_c31L-JJ_9/?igshid=11mpddoha1rbe

Team PMG Awareness takes to the track on Rare Disease Day with its brand new race car! It’s definitely an attention getter! This car houses over 600 names of individuals who are affected by Polymicrogyria. Team PMGA has their eye in their 5th consecutive Western Endurance Racing Championship! We will be racing at Willow Springs, CA today, bringing awareness to Polymicrogyria and rare diseases in general! Stay tuned for more updates!! Go PMG!! #pmgawareness #rarediseaseday2020 (at Rancho Santa Margarita, California) https://www.instagram.com/p/B9J7EYOJhh8/?igshid=15o9mz4gacq91

PMG Awareness Organization welcomes any and all individuals who are willing to learn and help us spread awareness about Polymicrogyria. We also are looking for sponsorships for the event! Please email [email protected] if you are interested in partnering with us! We hope to see you there!!

Polymicrogyria Moms Are Not For the Weak! Get your shirt today before time runs out! All proceeds will go directly to the PMG Awareness Organization! https://www.customink.com/fundraising/pmg-moms-are-not-for-the-weak-unisex-tshirt?side=front&type=1&zoom=false (at Irvine, California) https://www.instagram.com/p/BzVx2hmp7dK/?igshid=mmarl1km8yw7

Had a great weekend hanging at the track with Team PMG Awareness! Tom qualified in 1st place so he led the pack as the race started. Our car was FLYING around that track and Tom was able to gain a 3 lap lead up until he came in for a pit stop. Some gas was spilled during the fill up which caused a 5 minute penalty. Then something g happened with his light bar on the car and he had to have it fixed in order to be on the track. They got it fixed but it took them about 10 minutes. So with a 15 minute total delay, he fell back to 18th place. He was able to catch it up with some lightening speed laps and mange’s to come in 12th overall. But because he has done so well in the season thus far with points, he actually came in 1st in class!!! Way to go Team PMG Awareness!!! Way to overcome!! He also received 1st place Championship OVERALL for the 2018 WERC Series! What a cool trophy which Tom had dedicated to our kids, the “PMG WARRIORS”. Tom says “after all, these kids are my inspiration and the true champions”. What an honor! After the night was said and done, Tom brought hime 4 trophies...and he does this for us, for you, and for your kids! A true hero! https://www.instagram.com/p/BwAKw5vHt-w/?utm_source=ig_tumblr_share&igshid=lun57fqnjuo1

🥤PMG TUMBLERS ON SALE!!🥤 ‼️Today ONLY, BOGO FREE‼️ Purchse BOTH for the price of one! Amazing deal, but you have to purchase TODAY! 💲That's a savings of $39.99💲 Go to https://www.printedkicks.com/collections/30oz-tumbler/products/polymicrogyria-awareness-floral-30oz-uv-tumbler https://www.printedkicks.com/products/polymicrogyria-awareness-heart-key-30oz-uv-tumbler (Percentage of all proceeds goes directly to PMG Awareness Organization!!) https://www.instagram.com/p/BuR2mVJnrBJ/?utm_source=ig_tumblr_share&igshid=eqjxlic9l5kn

Important meeting this morning!! Rick and I are having breakfast with the Sales Manager of the venue we are hoping to book for our 2020 PMG Family Convention!! This property is PERFECT!! Please keep your fingers crossed that everything aligns and is meant to be! 🤞🤞🤞 (at Orange County, CA) https://www.instagram.com/p/Btd6wyjHj9b/?utm_source=ig_tumblr_share&igshid=1hxy5q1k2mevk

Gotta ❤️ our California sunsets! Can’t wait to share these with everyone in 2020 during our PMG Family Convention! You won’t want to miss them!! Details coming very soon! Stay tuned! https://www.instagram.com/p/BtAE5icniah/?utm_source=ig_tumblr_share&igshid=1crix4v8sf7g9

https://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm627310.htm https://www.instagram.com/p/Bq2ZtbuHbYG/?utm_source=ig_tumblr_share&igshid=1ovilktelpi0

CONGRATULATIONS TO ALL OF US!!! Thank you for having such wonderful things to say about PMGA! Because of you, we have been honored with one of the first Top-Rated Awards of 2018 from GreatNonprofits! PMGA be featured on the GREATNONPROFIT's website, their 2018 Top-Rated List, and distributed to media and corporate foundations. The official 2018 Top-Rated List will be announced after October 31. We appreciate all of your contributions! Please continue to send in your reviews and we will post each one on PMGA's website! Check out what people had to say at https://greatnonprofits.org/org/pmg-awareness-organization-inc-1 (at Irvine, California) https://www.instagram.com/p/Bphzj4HHrOO/?utm_source=ig_tumblr_share&igshid=ebdkaptarcs9

Need to do some holiday shopping? This is the EASIEST way you can help and give back to PMGA!!! Please keep us in mind and make us your charity of choice all year round for Amazon Smile! Through Nov 2, AmazonSmile is donating 5% (ten times the usual amount) to PMG Awareness Organization when you shop at smile.amazon.com/ch/45-4626426. #AmazonSmile #StartWithaSmile https://www.instagram.com/p/BphL38THIz_/?utm_source=ig_tumblr_share&igshid=113eciuyjgr58

Day 2 of Global Genes Summit! This was one of my favorite quotes from yesterday!! https://www.instagram.com/p/BohEEziHy5w/?utm_source=ig_tumblr_share&igshid=1hcb21te08wub

at Hotel Irvine https://www.instagram.com/p/Boeqq3unQU_/?utm_source=ig_tumblr_share&igshid=17nzyhh4vqs98

***Happy MICROCEPHALY AWARENESS DAY! *** Yes, along with Polymicrogyria otherwise called PMG, (simply put, "too many small folds in his brain"), Sean also was born with Microcephaly (small head size). We were told of this diagnosis when I was 6 months pregnant with him. At 8 months gestation, it was suggested that I terminate my pregnancy because the doctors THOUGHT that he wouldn't survive birth, and if he did, he would never walk, talk or do anything functional. Well, they THOUGHT wrong! Here he is, at age 12, happy and full of life and attitude! Lesson learned, NEVER GIVE UP ON YOUR CHILD! We will be heading to Littleton, Colorado this Friday to participate in PMG Awareness Organization's "Fueled By Love" 5k event! We will be completing the distance with other PMG families and friends and I am so excited to see familiar faces and meet new ones! The money raised from this event is going to go directly to the PMG Organization and will allow us to host our next "PMG United" Family Convention here in California! Our family alone has a goal of raising $1000.00. We are SO CLOSE to reaching it, with a total of $720.00! If you would like to support TEAM SEAN HUDSON, we would be so grateful! Please learn more about PMG at www.pmgawareness.org. To learn more about the 5k event, (you can register and receive our custom designed medal and bib, tshirts are optional at signup) please go to https://runsignup.com/Race/CA/Anywhereintheworld/FueledByLovePMGAwarenessVirtualRunandWalk?remMeAttempt= If you would rather just support Team Sean, please go to www.runsignup.com/teamseanhudson There is no amount to small! Your donation will make a HUGE impact on bringing all these families together in 2020! Thank you in advance for supporting my son! He is a true Microcephaly AND Polymicrogryria warrior!! - with Rick Hudson https://www.instagram.com/p/BoXD3_PnOP6/?utm_source=ig_tumblr_share&igshid=1s8b55fjhdsna

Our President/CEO will be attending the #2018GGSummit this coming week! She will be networking and raising awareness for PMG with rare disease patients, caregivers, advocacy and research organizations from all@over the world! Wish her luck! #pmgawareness (at Irvine, California) https://www.instagram.com/p/BoW8w0PHawp/?utm_source=ig_tumblr_share&igshid=4op01q58cfrk