An open note to my irl friends
If you walk into my house on a bad day, you might think I am lazy. There are dishes in the sink. Laundry is piled up. The floor needs sweeping. And I am lying on the couch, scrolling on my phone.
I know how it looks. I know the judgment that comes with it.
But here is what you cannot see: my body treats standing up like a medical emergency. My brain treats starting a task like climbing a mountain. And every chore I do today comes with a 48 hour price tag that I will pay tomorrow.
I am not lazy. I am out of spoons…and my spoons are counted in millimeters, not tablespoons.
I have a condition called POTS. When I stand up, gravity pulls my blood into my legs. My brain panics because it is not getting enough oxygen. I get dizzy, my heart races, and that "physical block" hits..a pressure in my head that makes thinking impossible.
For a normal person, washing a sink full of dishes takes 15 minutes of standing.
For me, that 15 minutes triggers a cascade: brain fog, trembling, and a crushing fatigue that lasts for hours. By the time I finish the dishes, I cannot do anything else for the rest of the day. I have spent my whole energy budget on a single chore.
Here is the cruelest part: my immune system is on a delay timer.
If I push myself to vacuum the floor or clean the bathroom, my body does not rebel immediately. It waits. 24 to 48 hours later, I wake up with the flu like aches, the freezing cold that blankets cannot fix, and the joint pain that makes moving unbearable.
That one hour of cleaning costs me two full days of being bedridden. It is not laziness to avoid that…it is self-preservation.
I also have ADHD and autism. This means my brain struggles with "task initiation." It is not that I do not want to clean. It is that my brain cannot find the on switch.
For a neurotypical person, deciding to clean is one step: "I will do the dishes." For me, it is a cascade of overwhelming decisions:
· How long will it take?
· What if I get interrupted?
· What if I start and cannot finish?
That invisible wall is real. It is exhausting. And it makes even a small chore feel like a life or death decision.
This is the part that scares me most. I have had a brain hemorrhage and a heart attack caused by my blood vessels clamping shut. When I overexert myself, I raise my blood pressure and heart rate. For a healthy person, that is exercise. For me, that is a risk.
Pushing myself to carry laundry up the stairs or scrub a bathtub is not just uncomfortable, it carries a real, measurable risk of triggering another vascular event. I am not being dramatic. I am being honest.
I am not asking someone to do everything for me. I am asking for help with the specific tasks that break my body and break my brain.
Here is what actually helps:
· Breaking tasks into small, specific chunks. Instead of "clean the kitchen," say "can you wash the three pans in the sink?" That one clear, tiny task is doable.
· Taking over the upright tasks. Vacuuming, carrying heavy things, scrubbing…those are the ones that physically wreck me. If you can do those, I can sit down and fold laundry or sort mail.
· Body doubling. Just having someone in the same room while I do a task helps my ADHD brain stay focused. You do not have to help …just be there.
· Giving me a heads up. If you text me and say "I am coming over in 2 hours to help you tackle the bathroom," I can mentally prepare. Surprise help still takes spoons; scheduled help gives me time to budget my energy.
I know I look capable. I know I am smart. I know you see me scroll on my phone and think "if she can do that, she can clean."
But scrolling is flat posture and low dopamine. Cleaning is upright posture, executive planning, physical exertion, and a guaranteed flare.
I am not choosing to live in chaos. I am choosing to survive. And sometimes, surviving means letting the dishes wait so I do not end up in the hospital.
If you can help, I will be endlessly grateful. If you cannot, I understand. But please…do not mistake my inability for unwillingness. I am fighting a battle you cannot see, every single day.