hi, sorry for the anon, but i wanted to ask you something. i was looking at the ALS tag and came across your post about your mother. I am so deeply sorry for your experience and your loss. my partner of 9 years has just been diagnosed with ALS. he is only 37 years old. i dont know what to expect. and i am heartbroken. would you ever be willing to speak to me about your experience with als? if not that is completely and totally fine. I'm just looking to connect with others about this disease. thanks and again i'm so so sorry for your loss.

This year, my mom unfortunately passed from ALS only 8 months from her diagnosis. You go through life thinking things like that only happen to people in news stories but would never become a problem in your life. Watching mom lose everything she loved to do in life to a disease so inhumane was awful and I would never wish it on my worst enemy. It was crazy to me how little anyone seemed to know about it including hospitals, doctors and more. It opened my eyes to how much awareness this needs on it. Talk about it, read about it...never stop. I wont.