#in which you could hear every heart in the theater break
#steveâs expression is one of someone whoâs lost a friend before #tonyâs is one of someone whoâs tried before
#tonyâs expression is the reason why i cry at night
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he wasn't even looking at me and he found me

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@lemonadeandrants
#in which you could hear every heart in the theater break
#steveâs expression is one of someone whoâs lost a friend before #tonyâs is one of someone whoâs tried before
#tonyâs expression is the reason why i cry at night

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im just. gonna rant. can i do read more on phone?? dont think so
im so fed up. i was way too optimistic coming on this holiday. im just completely exhausted and im gonna crash so hard when i get home (if not before) and honestly im not having a great time. there are good moments, donât get me wrong. being back in la crosse was a balm for my soul, as was getting to see friends again. but now iâm really struggling.
i canât do a lot of walking, and i had kinda figured my daily step goal should be about 4000 and im regularly doing 6000 and thats just not feasible
BUT I WANT TO. i want to be able to go and walk 2k without even thinking about it, i dont want to have to do everything one handed because im carrying a cane (i also dont want to be 25 and having to use a cane but thats a different kettle of fish)
i want to do so many things and see so many things but even being in the car is exhausting and i just need a break. i think after here & the next place itâs much more chill but im just. exhausted. i want to see the hoover dam!! i want to see the grand canyon!!! i want to walk the strip!! i want to go in all the casinos!!! but. i also feel like. whats the point. the grand canyons just a big hole. the hoover dam is gonna have stairs. theres gonna be a fair car trip & then lots of walking. i just need that to not happen. theres so much walking in the casinos. im just so melancholy about this. i would give anything to have two GREAT health days where i can do all i want to do and see everything i want to here, and then i would be okay with it.
anyway. that helped a bit. i am going to stop now. thanks if you read this. it helps to scream into the void.
do you ever just want to.. stab yourself in the stomach so things stop just for a bit? i want my pain to be visible rn
been doing a list of things that iâm grateful for on my twitter. wanted to add them here too.
â˘new friends. like. this is the first year at uni i haven't felt totally isolated and i loved it. with V , and our late night walks & Z with just hanging out without needing to talk to each other, just co-exist in the same space.Â
⢠getting to go to UW-La Crosse. it hasnt been as i hoped (worst flare up in years) but it's been a good experience. here's hoping 2018 is better in that aspect.
⢠discovering (and rediscovering) youtubers who are able to cheer me up, have helped me refind my faith in the midst of chronic illness & have shown me how to find joy even when it seems difficult
⢠Harry Styles & his overwhelming message of 'be kind' & how i've adopted that as my new mantra. "be kind, for everyone you meet is fighting a hard battle"
⢠the aforementioned Z who has helped me accept my sexuality, and helped me discover/learn more about my rom-id & gender
⢠reconnecting to a friend who i classed as a best friend throughout my later teenage years.
⢠taking steps to medically address my health issues
⢠(re)discovering the ability to like things unashamedly - both in terms of music & movies/tv shows.

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you know what?
iâm mad.

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chronic illness is:
getting back from the movie and barely making it to your chair before your legs give out even though youâve done hardly anything all day because this was the second /too loud/ noise youâd had today
chronic illness is:
sobbing because of exhaustion but having to try and stop to reply to your flatmate who is asking how the film is through your locked door
chronic illness is:
trying to imagine how the person you saw the movie with spent their night after the showing and figuring out that they probably went home & didnt even consider it as particularly taxing.
chronic illness is:
having to drink almost a litre (32floz) of gatorade to be able to stand up to walk to the bathroom.
itâs not fair.
chronic illness is:
not going away with your friends because your health will ruin someone's good time

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me: wants to be hugged and held, is totally touch starved and needs to be cuddled
also me: allows only a very limited number of people to touch me at all, let alone in a slightly intimate way. barely ever allows myself to show emotional weakness around people. gets anxious when someone hugs me for too long.
Iâm astounded by the privilege of people who disdainfully look at me at say, âI donât like relying on pills.â
Yeah, well, me either but I donât have the luxury of being able to survive without them.