LaLa Land

I had my very first episode in January 2014 with tingling in left arm which lasted 3 weeks. I had several more episodes so I went to the ER (epic fail). They told me I just had a headache.  The 2nd, 3rd, 4th and 5th times I went to the ER between January and February, I was told the same thing……. In March 2014 I began having numbness in my left leg which lasted over two weeks. In July 2014, I had an episode that twisted my mouth to the left, slurred my speech, I couldn’t remember things, couldn’t walk and my left eye drooped.  I was told it was now a cluster migraine, pulled muscle or stress. I was then hospitalized and diagnosed with Hemiplegic Migraines and Chiari Malformation in July 2014 . I have had many trips to the hospital since then as well as hospitalizations following increasing uncontrollable pain. I am currently searching for pain release as well as a cure for both diseases. My pain becomes too much to handle and each individual crisis is exhausting . I can have up to 10 a day. I couldn’t start 11th grade year of school , I’ve missed my Sweet 16th birthday party in October because of pain. I couldn’t complete Thanksgiving celebration with family and Christmas caused more pain. I just can’t enjoy simple things in life with my family as small as car rides or laughs. I’m still trying to learn to get back to my normal life and find any way possible to deal with the pain. But, through it all…I AM GRATEFUL….