actually I just had a fun thought. I doodle fishies a lot, like, A LOT. what if I started posting those to the coffee website? I have adhd so posts may vary but I think that's a fun thought. plus if I finish any I'll post it there first and stuff.
it might not all be fish themed. but I guess follow me on kofi for exclusive access to my diary🐠🐠🐠
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Attended a rattlesnake conference yesterday and one of the presenters was talking about public attitudes towards snakes, specifically how showing them in a non-aggressive context helps to create more positive attitudes, and. Y'all. I NEED to show you the image he used as an example
Look at him. Look at this smiley newborn sidewinder sitting in a bottle cap. He is so small and so happy he is EXACTLY the right size to sit comfortably in a bottle cap
I know quite a lot of trans men locally who are really active in social justice projects, anti-racism, anti-capitalism, anti-Zionist etc. But I've noticed that if I'm talking to one of them about something bad that happened to a trans woman at a local trans group, he'll often respond by saying "Oh, I don't think that can be right, there must be some other explanation."
I'll explain how it often happens that trans women are marginalised and kicked out of groups for really minor infractions (or even for no infraction at all), and he'll often say something like "Thanks for the info, that's worth being on the look out for, if it comes up."
Then I'll bring the conversation back to the example of the specific trans woman in the local area who had a bad thing happen to her at a trans group, and it'll be straight back to "Oh, I don't think that can be right, she must've done something worse."
It's like transmisogyny occupies this realm of "theoretical forms of oppression" that they can acknowledge as a possibility but never as a reality that happens in their own community to women that they know. It's really frustrating.
"of course i support trans women. in theory. hypothetical and nonspecific trans women have my speculative full and entire support. it's pure coincidence that every actual individual specific trans woman i meet or even hear about in real life just so happens to be a bad person. trans rights."
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I remember when I was younger, anytime I watched a movie where the characters have to kill a scary monster/alien, I always thought the act of killing it was intended to be part of the horror. Like there’s this amazing creature that we’ve never seen before, and maybe under different circumstances we could’ve coexisted with it, but it’s trying to attack you and you have to defend yourself, but by destroying it you also destroy the ability to ever understand it and that’s sad and is supposed to make you feel conflicted.
It was not until well into my adulthood that I realized most people do not have complicated feelings about movies where people have to kill a scary alien monster, nor is that necessarily meant to be part of the narrative (unless it very obviously is). They just want the scary thing to die because it’s scary. I don’t have a real conclusion to this I just started thinking about it for some reason.
its so awkward when people ask me why i dropped out and i have to be like "inadequate disability support" bc no one wants to hear this. they're always like i thought they had to provide that though isn't it the law? girl you might want to sit down i have some bad news about the litigation-based enforcement of the americans with disabilities act
then if i do say that theyre like, couldnt you sue? well theoretically maybe but not without spending more money than i have and putting myself through absolute hell. so no. no i can't.
practicing self care less out of self love and more for the sheer logical reasoning of it’d be kinda stupid of me to expect myself to be able to function without proper maintenance
“oh i don’t deserve rest and relaxation, i haven’t done enough, i haven’t earned it” and my car’s breaks don’t deserve break fluid because they aren’t breaking well enough to earn it. that’s what you sound like!!!!!
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tom nook is NOT a landlord!!! he is a construction worker! he SELLS you a WHOLE HOUSE! He is not CHARGING YOU however many bells a month to live there! You PURCHASE a HOME that he BUILDS FOR YOU and then you PAY HIM FOR HIS SERVICE. He charges no interest he sets no time limit it is a relationship built on trust. the only penalty you get for not paying off your home is that he won't build more home until you pay him for the first one. A guy that builds you a house wherever you want him to and then charges you for the cost of construction is not a landlord you own the fucking home
I've been meaning to make a post talking about my stroke because y'all got bits and pieces of the recovery but I never actually told the story of HOW it went down and the thing is the type of stroke I had is usually the type young people have and since having mine i've now heard multiple stories of people under 40 having very similar strokes and the scary thing is, is that they didn't get help right away. Because you're young and healthy and sure you feel weird but it'll pass right? but it doesn't, and it gets worse, and by the time you get to the hospital (some people literally take days to go) the deficits are worse and recovery is harder.
so here's a super long post about strokes in general, and mine in particular/what I went through.
So for strokes the signs are abbreviated BE FAST. Balance loss, Eyesight changes, Face drooping, Arm weakness, Speech difficulty, -> Time to call 911.
Had I known those MAYBE I would have figured it out but my symptoms were a little mixed. I was reading (fanfic!) in bed because it was a sunday morning and i had nothing pressing to do and suddenly got dizzy. I put my laptop aside because my eyes were blurring (Eyesight changes - symptom #1), and laid down, thinking it would pass, it didn't, it's a little vague how it progressed because I'd been having headaches and neckpain for about 3 weeks leading up to it so I was like 'idk is this a migraine?' (headaches can be a stroke symptom so symptom #2) but i got nauseous and eventually got up and to my utmost surprise I immediately fell over as if I was the drunkest of frat bros. The room literally spun before my eyes as I fell to the floor (Balance loss - symptom #3). I have had some Nights and I had never been that unsteady before. I crawled my way to the bathroom, threw up (nausea - not a common stroke symptom) , took 800mg of ibuprofen, and crawled back to bed.
if you know anything about ibuprofen you might know it's a mild blood thinner and that's a high dose. I may have inadvertently helped myself with that one. I was just feeling like shit and thinking 'idk this might help'
At this point I still thought we were still in Normal Land. Sure, it was a weird morning, but Surely There Was A Reason. (Yes There Was) Anyway, as I'm lying there willing my body to stop suffering I realize my arm is going numb (stroke symptom #4) and I switch positions, because weird, but it doesn't go away, and I gave it a good little while. I'm on a medication that can make my limbs tingle but it usually just does it to my fingers and it dissipates quickly but this wasn't dissipating, and then I realized one of my legs was also going numb. Then one side of my face is going numb.
(at the time I did not look in the mirror but I had a drooping eyelid - symptom #5)
Those all seem bad. I grab my computer and google 'when to go to the hospital for dizzyness' as that felt like the worst of my problems. and indeed the list I found highlighted that if you are also experiencing loss of balance, blurred vision, nausea, and limb numbness, you should see a doctor. That seems like far too many symptoms to be having all to be listed. I grab my phone (thankfully plugged in and by my bed), and start layering on more clothing because it's about 10 degrees out and i'm in a pajama dress. The very nice man at 911 talks with me and sends an ambulance, I tell him I don't think I can get out the front door of my building on my own and he asks if I can get to MY apartment door to which I say yes and he assures me that's fine they will have keys to my building.
(I have been since informed they love to chop down doors but no, I could get that far)
I wait by my door laying down on the ground and they arrive pretty quickly. They see to me in the hallway, which is more of a lobby in my building and the only place with room for me to lie down (I cannot stand unassisted at this point) they ask me a bunch of questions, take vitals, and ask me where I would like to be taken. Me, having never had to go to the fucking hospital in an emergency before, simply go 'wherever is close' because I again, I am having a stroke and do not have the wherewithal to think through these things.
A big firefighter helps me down the stairs (it's only a half flight and I still almost did not make it) and we get underway.
At the hospital they wheel me into triage and I mostly lie there gratefully and answer some questions and respond to some tests (grip strength, following a pen with my eyes, that sort of thing) and then I hear what is great when you've been at urgent care for two hours but what is Very Bad when you just arrived in an ambulance and that's 'She's next'. I jumped the line for a CT scan and an MRI. I was there less than ten minutes before I was actively being scanned. honestly closer to five.
my active symptoms seem to have been worse than some of the stories I've heard, not being able to walk AT ALL in particular, although some other are pretty equal (Footless Jo on youtube had a stroke around the same time I did of the same type and has discussed hers, she delayed going in despite the severity for a variety of reasons and it sounds like her recovery has been difficult) My recovery was pretty easy because i was actively being cared for and on blood thinners right away. I was pretty out of it in the beginning, but I was only in the hospital for 6 days and then in a rehab for another 4 to relearn how to walk and balance, then i was released unto the world and just spent time going to physical therapy and recovering for awhile. I was out of work for about 8 weeks total. I basically had the best outcome for a stroke. I recovered almost fully back to 100% (I'm about 2% less sure footed than I used to be, but it's rarely noticeable), my face still feels a little weird but has markedly improved so I live in hope it will eventually get back to normal. It massively sucked. But strokes can fuck you up for life and I came out a weird medical story to tell and have to take some extra medication now/precautions to take (i cannot do certain types of yoga, no weightlifting, no push ups, no going on rollercoasters.... things that could strain my neck essentially) but overall I escaped very lucky.
Listen I get it but you CANNOT use "sensory nightmare" as an excuse to avoid essential things. You HAVE to find a way to make it work, such as finding effective alternatives. But you can't just avoid it.
You need to eat some vegetables in your diet or you will become a lich.
You have to wear a life jacket or you will literally drown and die.
You need to be able to exist in public spaces with children.
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Seriously though, the way some people treat liking media as if it has an expiration date is so weird to me. And three years is still so recent in the grand scheme of things anyway, actually!
In case anyone finds it helpful because mobility aids are horrifically expensive and inaccessible…
And for those people who have access to mobility devices but might benefit from a second chair they can abuse without risking expensive damage…
Erik Kondo has made a website, Open Source Innovations, that details plans for DIY wheelchairs. These wheelchairs can be made from common materials like wood, plastic, and pvc. They are lightweight and can be custom fit to the user allowing from the same degree of movement you would get from a custom chair. And they are durable and easily repairable. (he has been stress testing his latest design by dropping it down stairs, dropping it out of a car, launching it across a driveway, and throwing it off a deck). Its 12lbs and I think he said its was in the $200 ish range for parts.
He also is working on cheap, open source, accessible designs for beach chairs, off road chairs, motorized attachments (think smart drive), and so on. Plus he skateboards in his wheelchair. Cool dude, helpful info, pass it on.
It's incredibly sad people have to resort to this, but it's a damn good resource. Use it. Spread awareness. Maybe one day people with physical disabilities won't need DIYs like this. But until then, reblog and share.