FASD-mommy

@fasd-mommy

First and foremost a follower of Christ. A wife. I'm an adoptive mother to a kid with FASD. I'm also a mom to two adult kids. Have started this blog to be able to document my thoughts and feelings free from my wee ones bio family and even from my own family. http://fasd-mommy.tumblr.com/post/153716411183/the-story-of-our-wee-one

93 posts

oursacredbreath

Day 31 of 99 Days to FASDay. Today starts a series of FASD myths and facts. Our own experience agrees with the above. We went to many different therapists over the years. Many didn’t understand the brain difference and thus except for some play therapy for attachment, all other therapy has not had great success. Have you had luck with therapy?

For more information on today’s post: https://oursacredbreath.com/2017/07/01/day-31-of-99-fasd-therapy-and-medications/

OMG YESSSSSSS!!! People always want to tell me to put my kid in ABA!! When the whole autistic population is beginning to point at ABA as their cause of suffering from PTSD!!! They need to just outlaw ABA!!

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oursacredbreath

Day 14 of 99 Days to FASDay. Difficulty with memory, particularly short term memory, is a primary characteristic of FASD.

oursacredbreath

Day 15 of 99 Days to FASDay. Today we look at Executive Functioning. Executive function is a set of mental skills that include working memory, flexible thinking, and self-control. We use these skills every day to learn, work, and manage daily life. Trouble with executive function can make it hard to focus, follow directions, and handle emotions, among other things.

oursacredbreath

Day 16 of 99 Days to FASDay. This is one area that so many caregivers struggle to understand. Confabulation is when the brain fills in gaps of understanding or of memory. Do you have any tips that have helped? For more information: https://oursacredbreath.com/2017/06/16/day-16-of-99-confabulation/

Confabulation and lying. What’s the difference for someone with Fetal Alcohol Spectrum Disorder?

oursacredbreath

Day 17 of 99 Days to FASDay. Today’s NB Approach tip is about recognizing strength, effort and energy needs. Even in the days of home based learning during a pandemic or learning something new there are different expectations that require a lot of energy to process and focus.

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oursacredbreath

Day 18 of 99 Days to FASDay. Today’s NB tip is to focus on the positive. Don’t let your values get in the way of your child’s needs. It’s also about respecting individuality and not “sweating the small stuff”. Give your child the freedom on things that really don’t matter in the long term. Is not brushing her hair such a big deal?

Before I adopted the maiden a co-worker said to me: “If your daughter wants to wear a hat to bed, let her.” In other words, “don’t sweat the small stuff” and give your child some control over his or her own life.

This was a comment from a Mom one year : “I just stumbled across this looking for something else,and wouldn’t you know – divine intervention – I was just looking at my 10 yo (fasd) daughter’s hair this morning and was thinking there is no way she brushed that — but she has a smile on her face and her favorite head band in among the tangles. So, I’m letting it go, kissed her cheeks and told her she looked beautiful!!. THANK YOU for the reminder!!”

Way to go Mama!

oursacredbreath

Day 19 of 99 Days to FASDay and it’s time to slow things down. One area you can really make a difference with those with FASD you support is stopping and waiting patiently for a response and action. Give your child or client time to process what you said and respond to your request. We live in a fast paced world – but this is one time you should just take a few moments to breathe and wait. Without finger tapping, foot stomping or demanding immediate compliance. I recently wrote a blog post about processing speed: https://oursacredbreath.com/2020/05/22/15-seconds-that-will-change-your-childs-life/

The speed at which we operate is usually too fast for people with FASD. The expectations that we hold for others to meet our requests or dem

oursacredbreath

Day 20 of 99 Days to FASDay is all about the relationship! This example is such a great one for me. I don’t know how other parents, caregivers or support people will relate, but for myself, this one is one I need to remind myself about often. Simply to remain calm in the chaos of our lives. Still trying to model and teach the pause.

oursacredbreath

I am very excited about the information that will be shared over the next 6 days of the 99 Days to FASDay countdown. Day 21 – 26 will focus on the words we use when talking about FASD, people with FASD and women who use alcohol during pregnancy.

The suggestions are from the FASD Language Guide by a group from the Manitoba FASD Coalition called Looking After Each Other.

For more information: https://oursacredbreath.com/2017/06/21/day-21-of-99-fasd-language-guide/

oursacredbreath

Day 22 of 99 Days to FASDay suggests we replace the term “external brain” with support person, circle, network or coach.

Remember every person is different. It’s important to honour the preferences of individuals with FASD.

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oursacredbreath

Day 24 of 99 Days to FASDay suggestion is to stop using 100% when referring to prevention and the “just one drink” can cause Fetal Alcohol Spectrum Disorder.

Why? We know alcohol use during pregnancy can cause FASD but we do not have clinical evidence that one drink over an entire pregnancy can cause FASD. We know FASD is preventable, but is it truly 100% preventable?

Using 100% simplifies a complex issue.

Red Shoes Rock. FASD Aware.

oursacredbreath

So advocating comes with risk. This was a comment posted on a Facebook Group where the Days are being shared. This was in response to Day 23. While I have always asked for people to let me know if I have made a mistake, or if something needs updating, and even am open to differences of opinion, I am not okay with direct personal attacks.

The information I share isn’t from me and my personal opinions, it is from reputable sources ... and in this particular instance this information is coming from a group made up of caregivers, professionals and people with FASD.

So rather than ask for clarification, this person just launched into an emotional response. Obviously triggered by the post ... but no thought about the source. Or looking to engage in a conversation.

So many assumptions made about me and the post. And the ironic thing was this was a post about shaming - and then I was shamed! No opportunity to discuss. Several people tried to explain and seek clarification from the OP but there were no more responses. Threw the stones so to speak and ran.

It absolutely is cool to have your opinion. But it’s not cool to personally attack people.

oursacredbreath

Continuing with the suggestions to change our language around FASD, Days 23 – 25 of 99 Days to FASDay focus on how to change the conversation when we talk about alcohol, away from the stigma, shame and blame.

oursacredbreath

I am very excited about the information that will be shared over the next 6 days of the 99 Days to FASDay countdown. Day 21 – 26 will focus on the words we use when talking about FASD, people with FASD and women who use alcohol during pregnancy.

The suggestions are from the FASD Language Guide by a group from the Manitoba FASD Coalition called Looking After Each Other.

For more information: https://oursacredbreath.com/2017/06/21/day-21-of-99-fasd-language-guide/

oursacredbreath

Day 10 of 99 Days to FASDay looks at when many people start to notice significant differences. For many children a noticeable difference begins between grade 3 & 4 in school as expectations are greater and peers are maturing. Did you find this with your child?

For more information: http://oursacredbreath.com/2017/06/10/day-10-of-99-when-fasd-shows-up/

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Watch Anya Live on Cam

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.

✓ Live Streaming✓ Interactive Chat✓ Private Shows✓ HD Quality✓ Free Actions

Free to watch • No registration required • HD streaming

oursacredbreath

Welcome to Day 4 of 99 Days to #FASDay. While the information for this graphic came from a 1993 study of twins, there was a study released in 2019

another twin study confirmed virtually identical prenatal alcohol exposures can lead to markedly different fetal alcohol spectrum disorder outcomes.

You can find information on both studies here:

https://oursacredbreath.com/2017/06/04/day-4-99-days-genetic-differences-fasd/

Fetal Alcohol Spectrum Disorder: Studies of twins have shown that non-identical twins exposed to the same level of alcohol can have differen

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Foster Documentary

Anybody seen the new movie out on HBO? I got a free HBO trial through Hulu just so I could watch it. Totally worth it, even though it made me cry. Obviously all cities are different, but man, did I see myself and my kids in it. Too real.

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