Endometriosis Awareness

Endometriosis impacts about 10% of people who have a uterus, and that EXTREMELY COMMON metric is merely an estimate, possibly a massive underestimate. This disease is notoriously difficult to diagnose, both due to the elusive nature of how it operates and the rampant misogyny that comes associated with the societal treatment of this particular organ system.

Like why aren’t we talking about all of this? Any given group of 30 people has 3 folks in it living with endometriosis…

so yeah. Sharing this all from Instagram here to raise awareness.

I am only formally diagnosed with ovarian endo but I’ve discussed with my doctor about how my chronic bowel issues are likely endo related/impacted and even my sciatic nerve pain in my back hip area is probably connected.

This affliction is a GD curse 🥲 The same way that autism is a diagnosis that has had all these underlying tendrils that connect a web of symptoms I experience together once I saw it, endo is the same. It’s a whole body chronic illness NO DOUBT.

here’s what I needed to hear because maybe you do too…

•it’s not normal to fill a whole large deva cup with menstrual blood in 2 hours. •it’s not normal to bleed for 8+ days at a time.

•it’s not normal to have cramps so bad you are bed ridden for days.

•it’s not normal to have sudden offsets of abdominal pain so strong you “see stars” •it’s not normal to have to rock to the side on the toilet and/or move your stomach around and like fucking palpate your own guts to be able to finally, fully empty your full bladder (<—this is the one that made me really wonder WTFFFF 🫣)

ALL OF THESE WERE MY RED FLAGS that I had multiple giant endometrial growths all throughout my abdomen.

but people said “cramps are awful” and “ugh I hate my heavy flow” and not like actual comparisons I could ascertain so I ignored a lot of bad shit.

I didn’t know how much other people menstruated or how they peed or what level of body pain occurred as they aged and got fatter and their bodies changed in countless other ways across a span of years.

I only got a proper endo diagnosis bc when I broke my arm in that terrible car accident back in 2019, my MRI at the ER in the trauma dept opened an eventual Pandora’s box of my medical issues.

anyway if one person suffers less bc they read this and get proper medical care that would make my heart soar with joy, so like SHARE THIS KIND OF KNOWLEDGE AND

🩸🩸🩸🩸DESTIGMATIZE OPEN SHAME FREE PERIOD TALK BY HUMANS OF ALL GENDERS AND AGES🩸🩸🩸🩸🩸

Be patient. Be gentle with yourself and others.

Just because the other day you did a workout, went grocery shopping, and/or washed your hair, it doesn’t mean you’re less valuable today while you’re stuck in bed.

This is fucking excellent news. Researchers in Australia have managed to achieve near perfect results for a blood test that can detect endometriosis.

Until now endometriosis has only been diagnosable through invasive abdominal surgery.