i want to start archiving my relationship to disability
i don't want to make a fucking substack
i need to write my way into this new relationship. X and X make fun of autofiction in the groupchat, but we're not all Elizabeth Gilbert, there's nuance here.
i don't want to make my body a metaphor. Reading "The Body is a Doorway" by Sophie Strand in conversation with "How to tell when we will die" by Johanna Hedva to help find this tonal difference. I just want my body to be my body, I want to look at it's failings clearly and precisely and compassionately but directly, Hedva style. Doom metal style. My connective tissue isn't a mycelial network, it's just here and I can be with it's disruptiveness without romanticizing it.
The GI doctor said my nausea was caused by constipation, as if I haven't been constipated my whole life. He gave me a drug that the nutritionist said would make my stools loose. I wait, I wait. No lose stools, mostly the same. Slow transit, they say. A GI doctor told my scared 18 year old self that I would need an ostomy bag one day, but why did no one look into why things weren't working? Doctors lose curiosity in the face of so much work, I know it's not personal. My current GI walked out while I was still talking to him, at first I loved how cunty and faggy he was until it was directed at me. I took Smooth Move tea last night, but belly has expanded to twice it's size, but no movement. How easily I could make this into a metaphor, WHAT DO I NEED TO LET GO OF? Three practitioners in the last month have asked me to talk to my disability, ask what it needs. I use it as an opportunity to say, I'M NOT OPEN TO THAT. Not that I don't think our body speaks to us in different ways, but I don't feel like this is just trauma or chronic stress or psychic unraveling, and I want to trust my intuition. I may change my orientation at some point, but it feels important to honor this current impulse, to see this bodily changes as challenging and impersonal. I fear there is ableism wrapped up in the question itself, like if I just excavate the right thing, I'll be cured. Maybe that's my own perfectionism, maybe it's just curiosity about what might emerge if we just ask the question, but I'm so sick of healing narratives that the question itself feels like an imposition.
I got bodywork in the front room of the practitioner's house. It's finally cool here so she opened the windows, but her neighbor was fixing his car with his daughter. Over and over again, he said, "Okay, hit the breaks!" and I had to laugh. Still trying to discern what hitting the breaks looks like for me, without making my body into something fragile and delicate, but while honoring its pretty limited and complex capacity. Literally talking slower, moving slower, thinking slower. Deeper breaths, more time on the floor, more time looking at the ceiling. There's been this social media trend lately that's like, create more than you consume! And I'm like, what if it's neither for me, what if I just let my brain soften into the darkness.

















