diapered autistic

(This essay is not in Plain Language. Please tell me if you want a Plain Language version and I will write one.)

I was slow to toilet train: I routinely came home wet from kindergarten and was still wetting myself occasionally in third grade and later. This was mostly an executive function problem; I usually knew I had to pee, but didn't have the executive function to stop whatever I was doing to use the bathroom.

I didn't get much in the way of help for this: I was kicked out of diapers before entering kindergarten. In kindergarten and first grade, I was 'on a schedule', which meant staff would pull me out of class to take me to use the bathroom periodically, hopefully before I'd wet myself. As early as kindergarten, my parents yelled at me for wetting myself, and past first grade, yelling was all the help I got. No one suggested diapers as a way to avoid the shame and humiliation of accidents; it was apparently better for a third-grader to wet herself in front of her classmates than for her to wear diapers.

Eventually, like some autistics, I 'grew out' of it: I learned to absorb the executive function cost of interrupting myself to go pee, or the pain of holding it because I didn't want to interrupt myself, and I stopped wetting myself.

At some level, though, I always understood that diapers were something I needed: when I hit puberty, they became a fetish object; when I transitioned in my late twenties, they shifted to a non-sexual emotional comfort, and I started wearing them more often. As I worked through some of my childhood trauma in therapy, they shifted again, to a radical way of 'rewriting the story' for my younger self who'd needed them, and I started wearing them full-time.

(I want to stop here and acknowledge that I was privileged to be able to make this change in my life: I can afford to live by myself to avoid judgmental family or housemates, and I can afford to buy disposable diapers out of pocket. Many people can't, and I'd love to see diapers as a voluntary adaptation for autistics destigmatized and covered by insurance.)

Once I was wearing diapers full-time, something magical happened: my brain settled back into those same patterns from elementary school, using my diaper when I'm hyperfocused and using the toilet when I'm not. I find focused tasks easier and less stressful, since I don't have to interrupt myself to go use the bathroom in the moment or cope with the ongoing sensory and executive function cost of feeling and knowing that I have to go to the bathroom eventually. I don't worry about burning something on the stove, forgetting important context while programming, or losing the plot of a movie or TV show I wanted to watch. I can get what I wanted to get done more easily, and have more energy and cope left for other things.

Despite the obvious benefits, I still felt ashamed when I found myself wet after a period of hyperfocus; I wasn't 'supposed' to wet myself, and I wasn't 'supposed' to wear diapers.

A couple weeks ago, as part of a larger effort to find better accommodations for myself, I found @endeverstar's wonderful article "Finding AAC as a verbal/semiverbal autistic". It talks about how xe found speaking with mouth words difficult and stressful but was nonetheless forced into a bunch of speech therapy as a kid so xe could be considered "speaking"; nobody offered xem AAC as a kid because xe didn't 'need' it and it was stigmatized. Xe discovered AAC as an adult, quickly realized it was easier and less stressful than mouth words, and is at this point mostly-nonspeaking.

This was me, toilet training, and diapers. Everything suddenly made sense.

I found toileting without diapers as a backup difficult and stressful, but was nonetheless forced to so I could be considered "toilet trained"; nobody offered me diapers as a kid past the 'normal' age because I didn't 'need' them and they were stigmatized. I rediscovered diapers as an adult, realized they were easier and less stressful, and decided to wear them all the time.

Overnight, that last whiff of shame disappeared. Diapers aren't just a fetish object, an emotional comfort, or a way of 'rewriting' my trauma. Diapers are a valid adaptive choice for autistics, even those who are technically capable of always using the toilet!

So, to paraphrase endever*: if you're a continent or mostly-continent autistic person and you're wondering whether diapers might be useful for you -- consider this your permission slip! You're allowed to try them if you think they might help, and you're allowed to keep using them if you find them helpful. Toileting works for abled people, but isn't inherently superior; don't listen to anyone who says you're 'not allowed' to use diapers unless you 'need' them or that you should force yourself to always use the toilet if that doesn't work for you.

"You see, why can't we have more discussion like THIS?! Diaper people speaking their truth and writing insightfully about their lives and experiences, instead of just "I want a daddy, I want a daddy, I want a daddy, I want, I want, I want...""

That's actually a really good question!

First, some sympathy for the "I want a daddy, I want a daddy, I want a daddy, I want a daddy" folks: life is overwhelming, and wanting support is *valid*.

I think one reason we don't see more discussion like that is that writing insightfully requires time, energy, and space -- I didn't write that in an afternoon, and I didn't write it in an especially unmasked/regressed headspace. It took a while, and required thinking about the role diapers played in my life.

Not everyone has the time or energy for that.

Another, frankly, is that diaper stigma/taboo pushes people into treating diapers as a kink, and kink spaces typically have more permissive norms, and people are loathe to push back on those.

Wanna fix that? Carry the conversation! Think about the role diapers play in *your own* life, and talk about them on main or on an SFW alt!

if you sit in a wet/soiled diaper (or underwear) for longer than 2-3 hours, it starts to get really painful and irritate the skin. this can lead to painful rashes, which can get infected. this is especially serious because many people who use incontinence products are also immunocompromised, and infections from sitting or walking around in a wet diaper can become extremely dangerous very quickly.

Moisture fosters a good environment for bacterial growth so change as soon as you can after noticing you’re wet and use baby powder to limit sweat

Keep your vulva clean(use a fragrance free wash every once in a while)

Use a barrier cream to reduce irritation in the area(i use vaseline on the area around the vulva)

Know the warning signs of infection so you can stop them before they get bad

Try to take a break every once and let things air out

can you guess what it is?

it's something there are constant gags about in media, something people mention in passing as a joke

something that if it presented itself in a public space i guarantee in most situations would be openly and loudly mocked (and if not humour, most people would at least express disgust)

don't believe me, do you?

✨ incontinence ✨

yep, it's incontinence. (get your giggles out now folks)

I am partially incontinent due to a fun cocktail of mental and physical disabilities and i know for a fact this is where people will stop reading, have a little laugh, and move on thinking this isn't worth the read anymore

but please, if you want to be a true disability ally, stick around and listen.

5% of the world population is estimated to be incontinent to some degree. 1 in 20 people (and no, that is not just elderly people)

so yea when you're in the grocery store, or at the gay bar, or seeing your college theatre's rendition of Grease - chances are there's a good handful of people in the crowd who struggle with incontinence.

it might be just someone who has minimal stress incontinence - something very common in people who have been pregnant - or someone who has adhd and forgets to go to the bathroom, missing the cues from their body that they are desperate, or yea it could be the 85 yr old grandma who wears diapers.

the point is, all of these people deserve respect for their bodies. everyone does. and this includes bodies that malfunction sometimes.

'omg thats so funny im gonna pee myself' 'reddit boys can go piss in ur little baby diapers' - great comeback bestie, but can we move on from them now? im gonna be honest these don't offend me personally, but it's worth being aware of where the humour of these comments comes from. its rooted in ableism

but something that does offend me and something that genuinely triggers me to have panic attacks and can push me into an anxious depressive state for days at a time, is when a character wetting themself is used as the butt of a joke on screen.

i'm thinking season one of stranger things. yeah, most of us know the scene right? when eleven forces a bully to pee his pants in front of the whole school? yep, triggers my ptsd right good that one does. and my siblings ptsd. and im sure many many many more ppl with incontinence (or even ppl without it who had the unfortunate experience of an accident in school)

if you found it funny, i dont care at this point. keep doing you. i dont blame you, okay? but i just want to ask that you reconsider WHY you laughed. 'because he pissed himself' okay but WHY is that funny? 'older kids and adults arent supposed to piss themselves' yea well it happens sometimes to most people at least once, and to 1 in 20 people much more often than that. so WHY is that funny?

keep asking why why why... and if in the end you can't think of WHY, then maybe there isnt a reason for you to laugh at it except that you've been taught to by osmosis. because everyone else laughs

dont give up here, because this is where i want you to really think. is it worth it?

is it worth laughing at something just because everyone else is, and risk 5% of the population going into a self conscious spiral, a panic attack because of your mocking, making them think they will never be accepted?

obviously u making a "im gonna piss myself" comment while laughing does not put 1 in 20 ppl into a panic attack, but u get where im coming from now i hope

so if you're still reading, im guessing you want to reconsider some of your behaviours and comments about this subject. thank you! now that you've realised where these jokes are rooted, you're going to start noticing a lot more often just how much this disability is mocked in society.

but what else can you do to help?

consider sticking up for us because understandably incontinent people dont tend to stick up for themselves lest it out us as incontinent. because admitting that is still met with laughter and disgust. help us jumpstart the incontinence acceptance by speaking up for the silent minority whenever an incontinence joke comes up in class/family gatherings/general conversation (this is my opinion, any other incontinent folks are v welcome to challenge this if u would rather ppl didnt for whatever reason!)

another thing you can do is - you won't like this - dont call ppl disgusting for buying adult diapers with silly animal characters on. unpopular opinion here on tumblr dot com, i know

but listen: incontinence products are disability aids! pullups, incontinence pads/pants, adult diapers, these are all disability aids. not products of k!nk, not things to snigger at in the pharmacy.

and would you complain about someone putting hello kitty stickers on their walking cane? would you think it gross for someone to doodle little stars and affirmations on their wheelchair armrest? is it wrong if someone wants pink hearing aids instead of a nude coloured ones? no?

then don't laugh if someone wants lil hearts on their pullups, and don't fake gag if you happen to see purple patterned adult diapers on ur dash. sometimes humans just like to decorate their bodies and extensions of their bodies. this is just that. and lets be real, plain white nappies just aren't the vibe sometimes

~ while we're at it, ppl with stoma bags are beautiful and deserve to wear whatever they want to feel comfortable and handsome as hell 😘 ~

and let me address the elephant in the room. yeah, some people have a f3tish for this stuff (just like anything can be made into a f3tish). whatever. if ur against that stuff then idc pls dont talk abt it in the tags and comments. anyway it is NOT an excuse to find actual disabled ppl disgusting for needing these aids.

and heres the funny thing: you usually can't tell if someone uses diapers for a f3tish or for their disability, or possibly both!

so you're gonna have to not attack random ppl on the internet bc you don't know what their life is like (what a shocking new hot take)

if a 46 yr old balding man with a beer belly and chest hair who isn't visibly disabled mentions he uses diapers, don't assume he's a creep and its a k!nk. it might be, sure, but it might be a condition or disability that you have no right to comment on or judge him for.

so if youre squicked by it just block and move on, don't send anon hate, dont make a post about how these types of people make you sick. you might just lose a valued mutual who was secretly incontinent and thinks you hate them for it now (whether this is right or wrong, its often how these things come across)

(btw if anyone fuckin talks abt k!nk on this post im going to scream directly in ur ear :) make ur own posts and don't bring any f3tish discussion onto mine)

had to get that out of the way unfortunately because this is a condition that is so unfortunately overrepresented by the f3tish side. i wouldnt have to talk abt k!nk on many other posts about disabilty aids but this one unfortunately was necessary

it's exhausting

imagine having a disability that requires aids thats almost EVERYONE winces at, laughs at, mocks loudly. and then to come on tumblr, the place that is meant to be full of acceptance from strangers in similar circumstances, queer and disabled and poc - but the moment your aid is brought up in discussion its seen as something disgusting and the property of freaks and creeps and people who are evil and want to do children harm

it's exhausting, like i said

i dont have much else to add honestly, im shit at writing cohesive posts (especially when im physically shaking with anxiety bc woohoo announcing to possibly thousands of ppl that im incontinent) but if anything i just hope you will question yourself if you laugh at this stuff in future

im going to go back into my little anxiety hibernation hole and never open up about this condition again ✌🏼

as for the incontinent population, we’re pretty silent about this condition so it’s easy to forget abt us. but please just keep us in mind and stick up for us when u can

— for clarity: incontinence is not ALWAYS a disability, it is a condition that can affect ppl on a sliding scale. for some it is a mild inconvenience, for some it severely impacts daily life. for some it is the only physical condition their body experiences, for some it is a symptom of a predetermined mental or physical disability such as generalized anxiety disorder or paraplegia. whether or not it is considered a disability, acceptance of ALL incontinence is a good step to eradicating this source of ableism —