“Zoloft, Prozac, Lexapro. All anti-depressants that I’ve tried before. I do my best to hide it, but my friends all know: I live a good life and pretend that it blows.”
~ Scotty Sire, My Life Sucks
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@chronicpainpartners
“Zoloft, Prozac, Lexapro. All anti-depressants that I’ve tried before. I do my best to hide it, but my friends all know: I live a good life and pretend that it blows.”
~ Scotty Sire, My Life Sucks

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Just a reminder/warning to everyone that withdrawals from cipralex/lexapro/any other brand name of escitalopram are brutal and that you shouldn’t quit cold turkey!!!! I ran out of mine and wasn’t able to get more for a week and I could barely get out of bed and the depression hit me worse than I remember. It’s okay to be on anti anxiety and antidepressant meds, don’t get freaked out and just quit!!! If u think you’re ready to get off them make sure you taper and talk to your doctor about it. Be safe and healthy and happy love u all.
Hi there, I'm looking for advice in finding a standing aid. I need it to help go from sitting at a desk to a full standing position. I have pain that shoots through my spine during the stand/sit transition but no problems walking.
Oh no, I'm soooo sorry to hear this. I would actually appreciate advice on this too!
TUMBLR FAMILY! DO YOUR THING!
I have a question. Is chronic pain self diagnosable
Hey, I'm not in the medical profession but the term chronic pain covers a wide range of illnesses and disorders. While you would definitely know if you are constantly in pain, a professional would be able to diagnose your specific condition and advise you on treatments. Pain comes in so many forms that it would be best for a professional to confirm the type of pain so you can find the best treatments for it. Not all pain is created equal (my medicine cabinet is a testiment to that).
Hello friends, just found this place and its been nice hearing from others that have similar experiences. For anyone who has doctors that refuse to test you for something and cant necessarily find a new doctor ask that it be noted in your record that they arent testing you. Sometimes they'll do the test just to cover themselves when you say that rather then have it in writing in case you do get the test later down the line and they were wrong. I dunno, might help

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PopSockets
Hi friends—this is Editor Diane, and I wanted to tell you about this neat little gadget I picked up for my phone: a PopSocket.
PopSockets are really fantastic accessibility devices! My connective tissue and joint problems makes holding my phone in certain positions a bit uncomfortable, and I’m really enjoying seeing the ways PopSocket can make phone use easier on me.
Things I can confirm: these little thingers stick tight to your phone and are extremely handy! They’re also extremely fun to pop open and closed*, especially since they have three different positions (closed, open a bit, open all the way) and can be angled somewhat.
I was initially hoping my PopSocket would help more with using my phone in bed (lying on my side), but what I’ve learned is that even with accessibility equipment, that’s still a weird position to use a smartphone in. Of course, I’ve found plenty of other uses for mine. It makes me less likely to drop my phone, and is a total gamechanger for my hand comfort. I love using mine as a media stand and a stabilizer when I’m watching something on my phone in my lap.
The only drawbacks I’ve found are: putting the weight of the phone on a finger or two can be tough on the joints—I sometimes need to change which fingers I have it between or change position. And, well, they aren’t made of some magical space-bending material. They do add bulk to your phone, even when closed, and they can catch on your pockets if you put them in there wrong.
For me, though, it’s absolutely worth the trouble.
There’s one question mark left: they’re theoretically removable, but I haven’t tried removing mine yet, since it’s stuck so tight. I don’t know if the adhesive will leave marks or work as well the second time around, but will certainly update this post if I find out. ETA, end of 2019: I moved mine to another phone with no adhesive problems. Nearly three years later, the adhesive is still going strong! The disc just broke a little bit and the paint has been worn off, but the core mechanisms are just chugging along. WOW.
ETA, also the end of 2019: now that there’s stuff to compare them against (thank you, market explosion), I should mention that Popsockets and the like are best if you need something to push against while you hold your phone. I have TINY hands, and I need the leverage in order to hit some of those corners properly.
Conclusion? If you think this’d be useful for you, you are probably right! I have no hesitation in encouraging you to buy yourself one immediately, and at about $10 (possibly less if you try alternative retailers), it’s a fairly low-risk proposition.
So, quit popping your joints out of their sockets and grab a PopSocket or two! (…I’ll see myself out 😂)
*User @punkulents pointed out that these are fabulous for stimming!
For the person who asked about weighted blankets; have you tried weighted lap pads? They are cheaper, easier to transport, and can even be DIY-ed by filling a small, flat pillow case with rice.
Hi, so I'm a graduating college senior, and have both lupus and endometriosis, and I've found that one thing that helps my anxiety about being bedridden and missing out on things/letting people down is having a weighted blanket to ground me to reality, so to speak. I discovered this while at my aunt's house when I borrowed hers, but boy oh boy, they're expensive (100-300+usd depending on quality, size, and weight)! Does anyone know of any good, affordable sources for weighted blankets?
I'm putting this out to the community because I myself don't have a weighted blanket yet 😭😭😭
I've been having pain for a long time that just seemed random, and just seems to be getting worse each year. I really want to start talking to my doctor about this, maybe fibro even, but I'm just so nervous. Last time i was just told I was too young to be in pain like I was explaining. I was hoping maybe i could get some tips, experiences, or normal pain experiences from others with fibro? I know the pain im feeling isnt normal. But I'm just so used to it. Thanks
Hey I'm so sorry you are suffering in silence. I went through similar from about 12 years old and I had to jump around from doctor to doctor until I found ones who would take it seriously. The common diagnosis prior to fibromyalgia was "growing pains" yet I'm 26 and still in pain 🙃. Do not fear talking about your issues with your doctor. If you do, you need a new doctor. Going to a rheumatologist worked for me regarding my fibro diagnosis. He took me seriously about what I was going through and did the required tests for arthritis, lupus, etc before landing on fibromyalgia. Find a doctor who believes the severity and realness of your pain.
I have hip dysplasia and I just wanted to say that it’s so nice to have found this blog, and if there are any other hip dysplasia friends out there feel free to talk to me! It’s nice to see other people who “get it” ❤️❤️
Awww! I'm so glad you found us!

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I'm a "spoonie" myself but I absolutely hate the spoon/spoonie metaphor. How many "beans" you have makes so much sense. As in being "full of beans", which is a phrase non-spoonies already understand because they usually are. Or using "faked beans" for us that don't have them when we have to cheat with medicines. My not sick friends ask me "How's yr bean count today?" these days. It helps them understand much better. Spoons make no sense at all in relation to energy. Unless yr Uri Geller maybe.
Loools I get you. The beans analogy makes sense though. To each their own 😊
Some people wake up, and aren’t in any pain??? Some can weeks without pain?? Literally can’t imagine that lol
Can't be real. Must be fake news.
When I take a step and my ankle self destructs…
“Because to live in pain is to live in romantic appreciation of the simplest things in this life. To take delight in the mundane. To draw attention to the forgotten. We must use our pain as pixie ships to awaken the depressing shores of the ungrateful among us. It is our lot and our gift in a way.”
— Berette Macaulay (An extraordinary voice of reason in the chaos that is my life || http://sebiartfoto.tumblr.com/)
Always reblog.

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Here’s to everyone with a progressive disability who is forced to watch their body slowly lose more movement and get worse. Here’s to everyone with a progressive disability who, every time you get hurt you cringe and fear because it means that body part probably won’t heal all the way and it just worsened your condition. Here’s to everyone with a progressive disability who has to constantly mourn your body and who you are are you lose your movement, your ability, as you see it get worse and you sit there trying to make your toes move, or your hand move and it just won’t happen and no one can really fully understand that mourning.
I go through it, I mourn with you, everyone with a progressive disability mourns with you, we are in this horribleness together.
That Flare Feel ^^