On Creativity with Disability
from the other side of the screen may 2026
[a column for Creation Magazine's CM Editorial House]
I have always felt the most inspired by loveβor the loss of it. There is a manuscript hidden in the depths of my Google Drive that has been collecting metaphorical dust for years, a majority of which I wrote while living with some of my closest friends. There is a collection of poetry printed on pages and stuffed in a box somewhere which unravels my first ever heartbreak. Everyone I have ever loved is in possession of a handmade gift, a painting, a drawing.Β
This love has always been my driving force for creating. But, I have had years go by where the only creative thing I have done is make a birthday card with a little doodle on it. There have equally been as many, if not more, frenzies of experimentation. I remember sitting in my closetβabout eight years oldβdetermined to get a novel out of my head. Or, being thirteen and curious about the different effects that chalk pastel can achieve; twenty and addicted to the steady rhythm of embroidery, twenty-two and so sad that verse was my only relief.Β
These days, however, I struggle to find that well within.Β
I live with chronic pain that inhibits my ability to function like a βnormalβ person. Days slip past when I am so brain-fogged all I can do is stare at the wall. Other days are lived from my bed, my body weighed down with the fatigue of always being in pain. The times when I am most functional are a game of catch up.Β
So where does this leave creativity? Forgotten, set aside, pushed down.Β
In last monthβs column I mentioned my visit to my family home in California. While I was there, I gathered up all the discs I could find of my former life as a competitive dancer and brought them back to England with me. I have spent weeks weeding through photos and videos, digitising my performances and reliving memories that I had buried.Β
For a long time I couldnβt bring myself to visit that time in my life because the videos activated harsh self-criticism. All I saw was the flaws, I couldnβt step back and see the beauty in the hard work, the collaboration, and the physicality. As I watch now, I experience flashes of memory. Incomplete and faded, these flashes remind me of the constant pain I felt, both physically and mentally.Β
My lungs strain, burning with the labor of keeping up with me as I fight to keep going. My muscles pull, stretch, and shake with the strain of contorting my body into the correct shapes. My body is slick with sweat even though weβve just started warm-ups. Do it again. And again. And one more time. Last time, they promised.Β
I can still smell the bath products I used when I soaked in magnesium for hours every week to try and alleviate just some of the pain. I remember sitting in class trying not to let it show, unable to keep still or the hurt would settle in. My brother still reminds me of the times I walked up and down stairs one at a timeβhunched like a ninety year oldβbecause my hips felt like they were going to snap. The constant dull ache in my lower back pulses, remembering with me.Β
Sometimes I still slip into the negative self-talk that was narrated in my head. If I wasnβt perfect, it wasnβt good enough. A stumble, falling out of a pirouette, or even just not leaping quite as high as the day before felt like failure. I had to push, mind and body, only to criticize myself further.
My body has mistaken art for pain, creating for sacrifice. My soul aches for the pursuit of perfection and the bitter punishment of its impossibility.
This time rewatching, however, I can also see the twinkle in her eye, that younger version of me who loved to perform. She put her all into everything, balancing homework with rehearsals and studying for tests with remembering choreography. I see determination, drive, and discipline. I see a girl who sparkles with love for the art and athleticism of dancing, who shines under a stage light. What I need to get through my perfectionist head, however, is that I am still that girl.Β
The structure and demand of being a dancer may be gone; that path not taken feels like a story, not my life. My muscles have atrophied and so my incompetent connective tissues struggle to hold me together.Β
Rewatching these videos was painful because it reminded me of what I canβt do anymore. But, I miss it. I miss being a part of someone elseβs creative vision. I miss learning and accomplishing new things. I miss being on a stage and performing, leaving myself in the wings. Most of all, I miss feeling strong.Β
My body may have conflated creativity with physical and mental pain. I may be too fatigued to act on the ideas I have. Being a creative person with chronic pain is chronically frustrating, but I have been reminded of the drive and determination of the little dancer.











